Sweet burn
Roast butternut squash
Caramelised
Tuesday, 29 March 2016
Hugged too tight #MSWarrior #poetry #haiku
Hugged too tight
Breathing really tricky
Nervous wreck
Faulty system
Where's the reset button
Nerves misfire
To exist or live
Why should we have to ask
Cruel choice
One day of stress
Leaves me less than impressed
About my MS
Energy horror
All run out, splutter, stop
Day of rest
Sun therapy #poetry #haiku
One hour warmed
Soul zings, nerves calm
Free therapy
Restoring sun
Bathing with healing
My lucky charm
Vitamin D
Heals, restores, warms
Such need
Come oh sun
Your weather heals me
I'm helpless
MS family tree #haiku #mspoetry
Peatland bog
No home for potatoes
MS family tree
Emerald isle
Roots of my family
Feels like home
I think this
Branch holds the roots
Of MS
Sentinels truth #mswarrior #haiku
Sentinel's truth
Rapid progression, they
Didn't stand guard
That's how it is
Let down by my body
Feels rubbish
Bad accessibility
Beneath bad access
A culture of exclusion
Bad for business
Poor access?
Shame on you, you'll be named
Don't be vacant
Ramps, wide space
Not that tricky really
Huge improvement
Think about all
Try a day on our wheels
Then you'll know
Poor Shop Access #disabledaccessday
Everyone else
Welcomed without barriers
No wheeled access
I wrote this when we were sofa shopping. It never occurred to me that even warehouse size shops full of furniture would exclude those of us on wheels, but they do.
Shame on you sofology and SCS; is my money worth less to you?
Chores never end
Chores never end
Fibonacci spiral
Mum at the sink
You've no idea
How much I wish I could
But I can't
Amazing news from the DWP #poetry #treasuredmoments
#TreasuredMoments
Easter Family Time #haiku #poetry
This is linked up at
Child of Mine #haiku #poetry
Saturday, 26 March 2016
On the way
On the way
To the flat today
We took a short cut
Down a single track
And we, got, stuck!
No way forward
No way back
We ..... sat.
Mike stressed
Didn't like the rest
Wanted to do his best
To get us on the move.
Rach and I
Were just fine
Whiling away the time
Chatting
Laughing
Selfie taking.
And then I decided
To see what was out there.
I turned my camera
And shot outside.
Zooming in
I could see
What I couldn't
Without the tech.
Trees in the sunshine
Fields full of green
Ponies wondering
Glories of spring.
It was quite sad
When at last
The block was past
We were again fast
But it made me laugh
When we passed
That pony
In the road
A slow load.
Thanks pony
For showing me
Spring beauty.
Tuesday, 22 March 2016
#TreasuredMoments 18/03/16
The place to share treasured moments in poems and blog posts.
Monday, 21 March 2016
Micropoems written on #worldpoetryday
Today I have to prove I'm disabled
Today's the day
Of my PiP assessment
The day they decide
If I'm worthy of payment
For being disabled
And in order to do that
They're going to question me
About what I am able
To do
And their trying
To catch me out
Because they assume
Without a doubt
That I'm faking
For money
What little they know
Why would I fake
When it's so degrading
Why would I fake
And reduce my living
Can't they see
From the doctor letters
And occu therapists
That I'm blind
Yes blind
But that's not enough
For them to say
Yes
Without interrogation
I also need to prove
That pain
And exhaustion
Lack of balance
And stumbling
Is real enough
To deserve some help
To pay for the stuff
Like taxis around
Because I can't drive
And vision aids
Stuff to survive
As a human being
But perhaps that's it
They don't really care
Not one little bit
That it hurts enough
To be incapacitated
To have life reduced
Not one I created
I'm a burden now
And one they must rate
How bad is it
How much can they hate
Us disabled people
To make this the process
So I'll go along
Though it causes me pain
Stress sky high
I'll do this again
Talk about life
In all it's embarrassment
To a stranger
It feels like harassment
And all the time
I'll pray
It's OK
Not only for me
But for everybody
Who has to go through this
Day after day
All of us lined up
Proving our worth
Or lack of!
Linked up at:
#Anythinggoes
#MarvMondays
#BrilliantBlogPosts http://honestmum.com/brilliant-blog-posts-24th-march-2016/
A to Z of MS challenge theme reveal
https://www.mstrust.org.uk/a-z |
Sunday, 20 March 2016
Amazing! Kids Magazines Review and Competition
In order to write the review I decided to have a few questions which I'd ask Rachel about each magazine. Here are the questions I asked Rachel and what she thought of the magazines.
Amazing!
What is it about?
It's an educational magazine based on Romans with sections about the Romans in each double page on Art, Life Science, Sport and Games, Communication, Food Tech, Health and Careers, Literature, Geography, Languages, History, English, Maths, Poetry, Personal Development, Non-Life Science, Morals and Activities.
What did you most like?
It's easy to read but not at all boring. I like the sections with things to make, draw and bake; and there are lots of good activities to do in the magazine. The pictures are really interesting and funny. I read it all in one go which means it must be good. (And she's got her nose in it again now when I'm asking her about it which is a great sign.)
What did you not like?
There was one part which was confusing, where the poster needs to be pulled out; but once I realised it was a poster it was fine. I think if the colours of the poster had had more differences to the pages around then it would have been more obvious to pull it out.
Is it something you would buy again?
It's interesting and it's a magazine I would get again definitely.
Would you recommend it to your friends?
I think my friends who like to read would love it. But I think it's for kids younger than me, who are lower down primary school, because I knew most of the facts. I'll give it to my friends who are in year 3 and see what they think of it.
What Amazing! say:
Amazing! is a monthly printed magazine that spans the National Curriculum for boys and girls aged 7+ and it’s designed to get children learning in a brand new and exciting way! We take things that children actually like reading about such as zombies, aliens, cheesy feet etc and link these in clever and humorous ways back to the national curriculum. In this way, children get to read things of interest to them, and all along they’re learning about the things that matter – there’s nothing else quite like it on the planet! Amazing! annual subscription is just £49 for 12 issues.
The Week Junior
What is it about?
This is all about the news, it's like a newspaper but easier to understand and aimed towards children. It's like CBBC Newsround in paper form. It's got lots of pictures and it's bright and colourful and easy to read. The sections are this week's big news, home news, around the world, the big debate, people, animals and the environment, all about tax, science and technology, photos of the week, sport, book club, this week's big event, what's on, on screen, do something, how to, over to you, puzzles, that's unbelievable and quiz of the week.
What did you most like?
I really like the pictures which accompany the writing. The section on animals and the environment is really interesting, but that's what I love to find out about. I spent ages on "that's unbelievable" and was reading that to mum.
What did you not like?
The writing is quite small and that makes it harder to read, but then if it was larger than the magazine would be thicker, But I'd prefer it larger.
Is it something you would buy again?
Yes I'd buy it again, I think this is a great way of getting the news and would be interesting for people in secondary school.
Would you recommend it to your friends?
I think my friends would like it and that it would be good to have in the classroom library.
What The Week Junior say:
Brought to you by The Week magazine, The Week Junior is a new current affairs magazine for children aged between 8 and 14. It's filled with fascinating stories and information, written to engage young, curious minds and encourage them to explore and understand the world around them. From news to nature, science to geography, film to coding, The Week Junior gives children the information they need, the way they want it: colourful, immediate, exciting. An annual subscription currently is half price, giving six issues for the price of twelve.
Try these magazines out for yourself
There are three easy ways to try these magazines out with your kids
1. Enter the competition
I have been given 10 copies of Amazing! magazine so that 10 of you can win 1 copy each.
To be in with a chance of winning one, enter using the rafflecopter below. The competition is open to UK entrants only and closes at midnight on Monday 28th March 2016. Good luck!
a Rafflecopter giveaway
2. Use the code at Amazing!
Visit Amazing! and use the code WOW10 to get 10% off subscriptions
3. Subscribe to The Week Junior
Visit The Week Junior and you get 12 copies for the price of 6.
A day in London with MS and the Family #accessday
http://www.visitlondon.com/traveller-information/place/288189-paddington-railway-station-london |
www.visitlondon.com |
Zizzi Victoria, looks great online, no where near so much space in real life! |
A similar mercedes black cab |
The GWR train layout for disabled passengers. |
www.123rf.com |
Friday, 18 March 2016
Young Carers Assessment
Rachel completed an assessment where she ticked what she did to help me either:
Rarely
Sometimes
Frequently
Against the following types of care:
Domestic Tasks - Household chores such as cooking, cleaning, washing, ironing , shopping and gardening
Emotional Support - observing emotional state, providing supervision, trying to `cheer up ` the carer recipient when they are low in mood, talking and listening.
General Care - tasks such as administering medication, changing dressings and assisting with mobility.
Intimate Care - lifting, washing, dressing, and assisting with toilet requirements
Child care - care for younger siblings in addition to other caring tasks.
Other responsibilities - any other miscellaneous tasks such as bill paying, translating, or accompanying to medical appointments.
Birthday Letter to Rachel (if a little late)
Thursday, 17 March 2016
My manifesto for a fairer society
- NHS
- schools
- local councils
- support for the disabled
- support for families in poverty
If we all get together, from all sectors being attacked, then we would have a strong voice and real influence.
Tuesday, 15 March 2016
#TreasuredMoments 09/03/16
This is the place to share your poems, photos and blog posts which treasure those special moments in life.
Today the prompt, if you choose to use it, is
Mum.
Wednesday, 9 March 2016
Kismet #mswarrior #poetry
Life #poetry #mswarrior #faith
I smile #mswarrior #poetry
I smile, I lie
Smooth waters run shallow
Tempest beneath
#poetheme #micropoetry #haiku #beneath #mswarrior #depression #spoonie
How to make blogs accessible for visually impaired
and that my blogs were accessible;
how wrong I was.
which we use depends on more our technology experience than our sight.
1. Colour Changes
Most Computers, Laptops, Tablets and Smartphones have factory settings
which can be changed to allow the colours to be changed;
this reduces the glare and increases the clarity of the writing.
What works is very much a personal choice
although some eye conditions benefit more than others.
2. Enlarge with Zoom
Computers, Laptops, Tablets and Smartphones also provide the ability
to enlarge the apps and websites using zoom.
This is fantastic, but means a lot more scrolling
is required when reading, which isn't easy with sight loss;
it also removes the 'whole page' view which most fully sighted people enjoy.
3. Screen reading software
These allow us to speak to post online and hear posted content.
I have only used this on my smartphone and tablet,
although I'm looking at getting some for my computer as well.
1. Pop ups I can't close
So many websites and blogs have "sign up" pop ups.
These are clearly designed to catch your attention,
and are meant to be easy to close for those not interested.
But when I have zoomed into the screen the "close" button is normally
INVISIBLE
which leaves me with two choices; keep searching OR give up.
Guess which I do most of the time?!
I know that there are hundreds of blog templates available
and that it's tempting to choose something different
especially when you're trying to get noticed in the blogging community.
BUT please don't choose something busy or cluttered.
There is a blog I love which has tiles of posts all over their front page,
I used to love how it looked, but now I can't find anything.
It's completely inaccessible for me.
I know that comments are made in forms,
normally found at the bottom of blog posts.
But you'd be amazed how many blogs don't have that setup;
which means I can't 'see' the comments box
and can't comment.
It makes me sad and also excluded.
Please make your comments area really easy to find.
You might want to consider these for your own blog;
you might be surprised how many extra readers you get.
Say no to pop ups
unless they have obvious
"no thanks" or "x" boxes
for us to close them down
and even that requires me to zoom in.
Please don't have small font on your blog
14 is the minimum for good accessibility
and they are exciting and dynamic
and you want your blog to stand out
but please try to stay with something simple.
I know it's boring
But it will help those of us with sight issues
and anyone with dyslexia as well.
and contrast
affect my ability to see text.
White on black is not great
I prefer yellow on blue
or blue on yellow
depending on how light sensitive I am.
I am not expecting you to use those colours,
but try not to put pink text on orange background
it's invisible.
Just give some nice contrast please
I had totally forgotten about the colour of links
once they've been clicked.
Please check these don't become invisible either
with one column of text and one side banner,
But if you need more than that, please ensure
it's clear and easy to navigate.
A simple search box is such a gift,
it allows us to search for anything we can't 'see'.
If something's worth saying,
it's worth saying twice.
Please make your commenting facility easy to find
we want to share the love
let us see how to.
I hate hate hate hate the new requirement for blogs and all websites to pop up a notice about cookies. I know that every website uses cookies, and I'm fine with that, please don't tell me and make me find the button or word to click to minimise it.
I hate hate hate this legal requirement.
It's such a barrier to accessibility.
then please post them in the comments.
And if you have a visual impairment
and have problems or tips
then place them in the comments as well.
Thanks
David and Bill from Disability and Jesus
have produced a wonderful document entitled
"A guide to producing accessible publications for your church"
which contains great background, reasoning and advice
to help you make all written information as accessible as possible.
It's written to specifically help churches, but is a wealth of information for everyone.
Linked up at
Brilliant Blog Posts