tag:blogger.com,1999:blog-14052446943447962132024-03-14T05:43:20.423+00:00MS CallingThanks brain; I don't think you're funny!LLM Callinghttp://www.blogger.com/profile/17199375981896229914noreply@blogger.comBlogger213125tag:blogger.com,1999:blog-1405244694344796213.post-46259212190812962162016-11-12T17:04:00.000+00:002016-11-12T17:04:09.344+00:00MS Calling has gone home to LLM CallingI started writing MS Calling exactly a year ago, it seems like it's been so much longer than that, but it really was 12th November 2015. <a href="http://mscalling.blogspot.co.uk/2015/11/a-bit-of-introduction.html" target="_blank">MS Calling: A bit of an Introduction</a><br />
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Looking back it's clear that I was hoping to keep the MS as a part of my life and therefore I started another blog to keep all talk about MS at a distance. But what's become clear over the last 12 months is that MS is part of me, and that it will have less control over my life when I accept that it's part of who I am. <br />
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In reality, MS has been part of my life since I was 17 (possibly longer) but because I never had a diagnosis for all the crazy things which I used to experience I just got on with it. Well guess what - I'm just going to keep getting on with it - after all I don't have any other choice.<br />
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What this means for blogging is that I'm bring MS Calling back into the fold and taking it under the banner of <a href="http://llmcalling.blogspot.com/" target="_blank">LLM Calling</a>. I haven't entirely figured out how that will work for the existing posts - because I don't want to loose the posts which I have written over the last year - but I am sure I will find a way.<br />
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<a href="https://4.bp.blogspot.com/-bHoFElWT6Q4/WCdLcOLJKwI/AAAAAAAAc3o/9xWFbcb-Zvc-mtzAcWfdJeKh7C5apdpPACLcB/s1600/LLM%2Bcalling%2Bbadge%2Bsmall.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="93" src="https://4.bp.blogspot.com/-bHoFElWT6Q4/WCdLcOLJKwI/AAAAAAAAc3o/9xWFbcb-Zvc-mtzAcWfdJeKh7C5apdpPACLcB/s200/LLM%2Bcalling%2Bbadge%2Bsmall.jpg" width="200" /></a></div>
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All new posts I write about my life, no matter what they refer to, will be at <a href="http://llmcalling.blogspot.com/" target="_blank">LLM Calling</a> - that's everything from parenting to marriage, from faith to politics, in poetry or prose, from physical to mental health, from birth through to death.<br />
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Everything together, accepted as part of the whole.<br />
Come and find me soon.LLM Callinghttp://www.blogger.com/profile/17199375981896229914noreply@blogger.com11tag:blogger.com,1999:blog-1405244694344796213.post-54552397163312395092016-10-14T13:35:00.000+01:002016-10-14T13:35:45.145+01:00Tonight we'll see equal @rnib<div class="separator" style="clear: both; text-align: center;">
<a href="https://3.bp.blogspot.com/-St8uxU6Jj9c/WADLKReuX8I/AAAAAAAAczY/rc4Um0H27e8hKqAgAuvCbKa0TBrAEHxswCEw/s1600/See-Through-Sound-webhome-page_702-x-400_0.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="113" src="https://3.bp.blogspot.com/-St8uxU6Jj9c/WADLKReuX8I/AAAAAAAAczY/rc4Um0H27e8hKqAgAuvCbKa0TBrAEHxswCEw/s200/See-Through-Sound-webhome-page_702-x-400_0.jpg" width="200" /></a></div>
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Tonight's the night</div>
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To see through sound</div>
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I won't be alone</div>
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Feeling blindly around</div>
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Both Mike and Rach</div>
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With specs designed</div>
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Will know what it's like</div>
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For me being blind</div>
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Funnily enough</div>
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They're pretty nervous</div>
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About what they'll see</div>
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Is that the purpose</div>
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Well yes, but no</div>
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It's more a case</div>
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That doing this</div>
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Puts them in my place</div>
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Just for one night</div>
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So they can see</div>
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What life can be like</div>
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For me being me</div>
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Truth be told</div>
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I'm nervous as well</div>
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How will they cope?</div>
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Only time will tell</div>
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But one thing's for sure</div>
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No matter how they fair</div>
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After this experience</div>
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We'll have much to share</div>
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<br /></div>
LLM Callinghttp://www.blogger.com/profile/17199375981896229914noreply@blogger.com8tag:blogger.com,1999:blog-1405244694344796213.post-5696903006570704502016-10-14T13:21:00.000+01:002016-10-14T13:21:31.245+01:00An evening out with MS<div style="text-align: center;">
This evening I'm going out. </div>
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And not just going out to a friend's house or a church meeting, but <b>out out</b>.</div>
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(<i>Not quite this out out though:</i></div>
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<a href="https://www.youtube.com/watch?v=0jP_brwVyvc"><i>https://www.youtube.com/watch?v=0jP_brwVyvc</i></a>)</div>
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<br /></div>
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Into London with the family to the see through sound concert raising money for <a href="http://www.rnib.org.uk/see-through-sound" target="_blank">RNIB</a>.</div>
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<a href="https://3.bp.blogspot.com/-St8uxU6Jj9c/WADLKReuX8I/AAAAAAAAczQ/chKdrEBd7TgqGL3IXgu9OVCyMXB2NfcOgCLcB/s1600/See-Through-Sound-webhome-page_702-x-400_0.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="113" src="https://3.bp.blogspot.com/-St8uxU6Jj9c/WADLKReuX8I/AAAAAAAAczQ/chKdrEBd7TgqGL3IXgu9OVCyMXB2NfcOgCLcB/s200/See-Through-Sound-webhome-page_702-x-400_0.jpg" width="200" /></a></div>
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This is a big deal.</div>
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A really big deal. </div>
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It involves a lot of different forms of transport <br />which all cause pain in different ways; <br />new places I don't know and so can't see in my mind; <br />decisions on the fly which are not easy with disability; <br />anxiety about how it will be <br />and excitement to be going.</div>
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We're staying overnight in London at a budget hotel which Rachel thinks this is an amazing treat. But in reality it's because neither Mike or I think I'll have the energy to cope with getting home late in the evening. And besides, who doesn't love a cooked breakfast in the morning. <br />But even that will take a lot of energy.</div>
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<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://1.bp.blogspot.com/-JBsY8Xx45cQ/WADLw8uH10I/AAAAAAAAczU/IqW9wOgiyYwqgwgmoqu_6atlQuiVEq4EQCLcB/s1600/spoon%2Btheory.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="200" src="https://1.bp.blogspot.com/-JBsY8Xx45cQ/WADLw8uH10I/AAAAAAAAczU/IqW9wOgiyYwqgwgmoqu_6atlQuiVEq4EQCLcB/s200/spoon%2Btheory.jpg" width="200" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><a href="http://mscalling.blogspot.co.uk/2015/11/spoon-theory-and-me.html">http://mscalling.blogspot.co.uk/2015/11/spoon-theory-and-me.html</a></td></tr>
</tbody></table>
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In all, this trip will take a couple of days worth of energy, possibly even a week's worth. It's not like it used to be, or like it is for most people is it? But it's possible to do and it's worth it.</div>
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To pull this off, the whole week around today has been planned to the smallest detail. And here, with the help of cat photos, is what today and tonight will look....</div>
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Stay in bed lying down until 11am</div>
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<a href="https://2.bp.blogspot.com/-eNVQ73qgCgU/WADMWB-9iNI/AAAAAAAAczk/ObA-NNguMJgDDBd1N9Kfh3iQbzLnuNOEwCLcB/s1600/pexels-photo-135859.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="133" src="https://2.bp.blogspot.com/-eNVQ73qgCgU/WADMWB-9iNI/AAAAAAAAczk/ObA-NNguMJgDDBd1N9Kfh3iQbzLnuNOEwCLcB/s200/pexels-photo-135859.jpeg" width="200" /></a></div>
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Keep my feet up until 2pm when we leave</div>
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<a href="https://4.bp.blogspot.com/-4x4B-4izxoM/WADMWHMZFyI/AAAAAAAAczg/9dO5w5tEDSEUCu_Au2YlLKt4Ahvs8ksJgCEw/s1600/pexels-photo-135858.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="133" src="https://4.bp.blogspot.com/-4x4B-4izxoM/WADMWHMZFyI/AAAAAAAAczg/9dO5w5tEDSEUCu_Au2YlLKt4Ahvs8ksJgCEw/s200/pexels-photo-135858.jpeg" width="200" /></a></div>
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Stay as calm as possible, allowing Mike to take control of the travel</div>
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<a href="https://1.bp.blogspot.com/-Fa-s2kdswwU/WADMWB4oYQI/AAAAAAAAczc/AHW8dsTHekwroX0wN1tZPZ59BSpLCHAbACEw/s1600/pexels-photo-126407.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="112" src="https://1.bp.blogspot.com/-Fa-s2kdswwU/WADMWB4oYQI/AAAAAAAAczc/AHW8dsTHekwroX0wN1tZPZ59BSpLCHAbACEw/s200/pexels-photo-126407.jpeg" width="200" /></a></div>
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Lie down at hotel for as long as possible before concert</div>
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<a href="https://4.bp.blogspot.com/-eNVQ73qgCgU/WADMWB-9iNI/AAAAAAAAczk/xQ1Ocb3e9DI9fAan2rB6gH1pLFc94s6CgCEw/s1600/pexels-photo-135859.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="133" src="https://4.bp.blogspot.com/-eNVQ73qgCgU/WADMWB-9iNI/AAAAAAAAczk/xQ1Ocb3e9DI9fAan2rB6gH1pLFc94s6CgCEw/s200/pexels-photo-135859.jpeg" width="200" /></a></div>
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Enjoy the concert without embarrassing Rachel</div>
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<a href="https://1.bp.blogspot.com/-WiIrtrUbPLA/WADMWXXGLGI/AAAAAAAAczs/lpCJB6baWrEatqvab8xHRiye9hpPJd6aQCEw/s1600/pexels-photo-137049.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="112" src="https://1.bp.blogspot.com/-WiIrtrUbPLA/WADMWXXGLGI/AAAAAAAAczs/lpCJB6baWrEatqvab8xHRiye9hpPJd6aQCEw/s200/pexels-photo-137049.jpeg" width="200" /></a></div>
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Sleep as late as possible tomorrow morning</div>
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<a href="https://4.bp.blogspot.com/-eNVQ73qgCgU/WADMWB-9iNI/AAAAAAAAczk/xQ1Ocb3e9DI9fAan2rB6gH1pLFc94s6CgCEw/s1600/pexels-photo-135859.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="133" src="https://4.bp.blogspot.com/-eNVQ73qgCgU/WADMWB-9iNI/AAAAAAAAczk/xQ1Ocb3e9DI9fAan2rB6gH1pLFc94s6CgCEw/s200/pexels-photo-135859.jpeg" width="200" /></a></div>
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Come home, possibly after finding some Pokemon, </div>
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depending on how I feel and how sight, pain and fatigue are doing</div>
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<a href="https://3.bp.blogspot.com/-FGORoorF20I/WADMWXE7g6I/AAAAAAAAczo/42pSbYDdFpYkb9x2tz9zIDOzSzjXV4sgQCEw/s1600/pexels-photo-166001.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="200" src="https://3.bp.blogspot.com/-FGORoorF20I/WADMWXE7g6I/AAAAAAAAczo/42pSbYDdFpYkb9x2tz9zIDOzSzjXV4sgQCEw/s200/pexels-photo-166001.jpeg" width="200" /></a></div>
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Hopefully that'll mean fun for us all and I won't end up in a crazy mess. </div>
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Time will tell. </div>
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Watch this space.</div>
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<span style="font-size: x-small;">Cat photos taken by <a href="https://www.pexels.com/u/inge-wallumrod-32456/" target="_blank">Inge Wallumrod</a> and used under Creative Commons License.</span></div>
LLM Callinghttp://www.blogger.com/profile/17199375981896229914noreply@blogger.com4tag:blogger.com,1999:blog-1405244694344796213.post-83827691879459078962016-10-06T16:05:00.000+01:002016-10-06T16:05:22.725+01:00Each new day #nationalpoetryday #messages #sayitwithapoem<div dir="ltr" style="background-color: white; color: #222222; font-family: arial, sans-serif; font-size: 12.8px;">
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<span style="font-size: 12.8px;"><br /></span></div>
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<span style="font-size: 12.8px;">Each new day</span></div>
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<span style="font-size: 12.8px;">When we're out</span><span style="font-size: 12.8px;"> </span></div>
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<span style="font-size: 12.8px;">Others scowl</span></div>
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<span style="font-size: 12.8px;">Eyes roll about</span></div>
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<span style="font-size: 12.8px;">But I can't see</span></div>
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<span style="font-size: 12.8px;">Those who frown</span></div>
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<span style="font-size: 12.8px;">Or if they stare</span></div>
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<span style="font-size: 12.8px;">If they're not keen</span></div>
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<span style="font-size: 12.8px;">On my wheelchair</span></div>
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<span style="font-size: 12.8px;">And to be honest</span></div>
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<span style="font-size: 12.8px;">I don't care!</span></div>
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<span style="font-size: 12.8px;">It's MY chair</span></div>
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<span style="font-size: 12.8px;">It gets ME out</span></div>
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<span style="font-size: 12.8px;">And in its yellow</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">It might shout</span></div>
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<span style="font-size: 12.8px;">And not blend in</span></div>
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<span style="font-size: 12.8px;">But why SHOULD I?</span></div>
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<span style="font-size: 12.8px;">Should I hide</span></div>
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<span style="font-size: 12.8px;">Or stay inside</span></div>
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<span style="font-size: 12.8px;">Well, yes</span></div>
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<span style="font-size: 12.8px;">Some say</span></div>
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<span style="font-size: 12.8px;">But I WILL NOT</span><span style="font-size: 12.8px;"> </span></div>
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<span style="font-size: 12.8px;">Hide away</span></div>
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<span style="font-size: 12.8px;">Not until</span><span style="font-size: 12.8px;"> </span></div>
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<span style="font-size: 12.8px;">I can't get out</span></div>
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<span style="font-size: 12.8px;">Until I'm stuck</span></div>
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<span style="font-size: 12.8px;">And even then</span></div>
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<span style="font-size: 12.8px;">We'll find a way</span></div>
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<span style="font-size: 12.8px;">Not sure how</span></div>
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<span style="font-size: 12.8px;">But that's for</span><span style="font-size: 12.8px;"> </span></div>
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<span style="font-size: 12.8px;">Another day</span></div>
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<span style="font-size: 12.8px;">Until then</span><span style="font-size: 12.8px;"> </span></div>
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<span style="font-size: 12.8px;">I will try</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">The best I can</span></div>
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<span style="font-size: 12.8px;">To live my life</span></div>
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<span style="font-size: 12.8px;">Coz this is just</span></div>
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<span style="font-size: 12.8px;">How it must be.</span></div>
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<span style="font-size: 12.8px;">It's not the way</span></div>
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<span style="font-size: 12.8px;">That we had planned</span></div>
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<span style="font-size: 12.8px;">But with my chair</span><span style="font-size: 12.8px;"> </span></div>
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<span style="font-size: 12.8px;">White stick in hand</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">I'll live my life</span></div>
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<span style="font-size: 12.8px;">The way I hoped</span></div>
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<span style="font-size: 12.8px;">With loved ones near</span></div>
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<span style="font-size: 12.8px;">With as little fear</span></div>
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<span style="font-size: 12.8px;">As we can muster</span></div>
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</div>
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<span style="font-size: 12.8px;">Though that's often hard</span></div>
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<span style="font-size: 12.8px;">But disabled card</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">Gives access</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">To caring ones</span></div>
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<span style="font-size: 12.8px;">So off we go</span></div>
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<span style="font-size: 12.8px;">To try it out</span></div>
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<span style="font-size: 12.8px;">Somewhere new</span></div>
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<span style="font-size: 12.8px;">It might be nowt</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">Worth writing</span><span style="font-size: 12.8px;"> </span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">Home about</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">But what's to lose?</span></div>
<br />
<div dir="ltr" style="background-color: white; color: #222222; font-family: arial, sans-serif; font-size: 12.8px;">
</div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">Every day's</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">A chance to say</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">Hi world</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">What you got for me?</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">What shall I see?</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">What shall we do?</span></div>
<br />
<div dir="ltr" style="background-color: white; color: #222222; font-family: arial, sans-serif; font-size: 12.8px;">
</div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">My vision's just</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">As huge as ever</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">Physical limits never</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">Seem to stop the mind</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">In it's dreaming</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">Nor stop God</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">In His leading</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">Of my life</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">In my calling</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">So I'll just</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">Keep on following</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">Don't know where</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">It is going</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">But the rowers</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">Keep on rowing</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">We've no earthly</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">Way of knowing</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">What will come</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">Or what is going</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">To happen.</span></div>
<br />
<div dir="ltr" style="background-color: white; color: #222222; font-family: arial, sans-serif; font-size: 12.8px;">
</div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">In fact</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">This could be you</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">Ten years from now</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">Or only a few</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">Months away.</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">What would YOU say</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">If YOU could see</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">What will be</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">Would you change</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">Your life</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">Or will your life</span><span style="font-size: 12.8px;"> </span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">Change you</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">What should you</span><span style="font-size: 12.8px;"> </span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">Do today</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">What have you</span><span style="font-size: 12.8px;"> </span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">Delayed</span></div>
<br />
<div dir="ltr" style="background-color: white; color: #222222; font-family: arial, sans-serif; font-size: 12.8px;">
</div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">Take the bull</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">By the horns</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">Hold on tight</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">And charge</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">Don't hold back</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">Until</span><span style="font-size: 12.8px;"> </span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">You lack</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">The choice</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">And even then</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">Rejoice</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">Whilst you have</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">A voice</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">Rejoice</span></div>
<div style="text-align: center;">
<span style="font-size: 12.8px;">In each new day</span></div>
LLM Callinghttp://www.blogger.com/profile/17199375981896229914noreply@blogger.com9tag:blogger.com,1999:blog-1405244694344796213.post-58018746388983598632016-06-24T09:23:00.003+01:002016-06-24T09:23:39.043+01:00Who's running the asylum now? #EURefResults<div style="text-align: center;">
It is true</div>
<div style="text-align: center;">
It seems like a nightmare</div>
<div style="text-align: center;">
But you're awake</div>
<div style="text-align: center;">
Yes really</div>
<div style="text-align: center;">
The lunatics have taken over</div>
<div style="text-align: center;">
Our country is in the hands of the mad men</div>
<div style="text-align: center;">
And I am terrified</div>
<div style="text-align: center;">
Anxiety souring</div>
<div style="text-align: center;">
Peace has flown the nest</div>
<div style="text-align: center;">
Because that was our safety net</div>
<div style="text-align: center;">
Europe is a community</div>
<div style="text-align: center;">
And even when we don't agree</div>
<div style="text-align: center;">
It's a place for sharing</div>
<div style="text-align: center;">
And debate</div>
<div style="text-align: center;">
Where we can relate</div>
<div style="text-align: center;">
Through difference</div>
<div style="text-align: center;">
As much as similarity</div>
<div style="text-align: center;">
Less about control</div>
<div style="text-align: center;">
Than being free</div>
<div style="text-align: center;">
together!</div>
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://1.bp.blogspot.com/-VWUr30uRO-c/V2zt8i_gvbI/AAAAAAAAcmE/nPHfDB5-kOATKfuFORCwiCYjzFrLlV5_ACLcB/s1600/13466007_10153587026117539_5762624670679042409_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="200" src="https://1.bp.blogspot.com/-VWUr30uRO-c/V2zt8i_gvbI/AAAAAAAAcmE/nPHfDB5-kOATKfuFORCwiCYjzFrLlV5_ACLcB/s200/13466007_10153587026117539_5762624670679042409_n.jpg" width="200" /></a></div>
<br />
<br />
<div style="text-align: center;">
Offering</div>
<div style="text-align: center;">
Borrowing</div>
<div style="text-align: center;">
Not resource hoarding</div>
<div style="text-align: center;">
But now that is gone</div>
<div style="text-align: center;">
We are gone</div>
<div style="text-align: center;">
And soon will be forgotten</div>
<div style="text-align: center;">
All those of us </div>
<div style="text-align: center;">
Who are seen as less</div>
<div style="text-align: center;">
The poor and lame</div>
<div style="text-align: center;">
The disabled and in pain</div>
<div style="text-align: center;">
At the bottom of the pile</div>
<div style="text-align: center;">
They don't care</div>
<div style="text-align: center;">
To share</div>
<div style="text-align: center;">
They don't wish</div>
<div style="text-align: center;">
To give</div>
<div style="text-align: center;">
What they hold</div>
<div style="text-align: center;">
So tight</div>
<div style="text-align: center;">
So the future's</div>
<div style="text-align: center;">
Not bright</div>
<div style="text-align: center;">
This is my fear</div>
<div style="text-align: center;">
I shed a tear</div>
<div style="text-align: center;">
For those far and near</div>
<div style="text-align: center;">
Who now for years</div>
<div style="text-align: center;">
Might suffer.</div>
<div style="text-align: center;">
You may not agree</div>
<div style="text-align: center;">
But don't shout at me</div>
<div style="text-align: center;">
This is my blog</div>
<div style="text-align: center;">
And my opinions can be free</div>
<div style="text-align: center;">
It is my fear</div>
<div style="text-align: center;">
It is my life</div>
<div style="text-align: center;">
And that of my child</div>
<div style="text-align: center;">
Who, with eyes wide</div>
<div style="text-align: center;">
Left for school</div>
<div style="text-align: center;">
Not knowing who'll</div>
<div style="text-align: center;">
Be running the country</div>
<div style="text-align: center;">
Now an Island alone</div>
<div style="text-align: center;">
Not knowing what</div>
<div style="text-align: center;">
The future outside the zone</div>
<div style="text-align: center;">
Will bring</div>
<div style="text-align: center;">
For me</div>
<div style="text-align: center;">
For her</div>
<div style="text-align: center;">
For the future</div>
<div style="text-align: center;">
Who's running the asylum now?</div>
<div style="text-align: center;">
And how?</div>
<div style="text-align: center;">
<br /></div>
LLM Callinghttp://www.blogger.com/profile/17199375981896229914noreply@blogger.com12tag:blogger.com,1999:blog-1405244694344796213.post-2600307356077612252016-06-17T20:37:00.000+01:002016-06-17T20:37:15.668+01:00What's the point in a bucket list?A friend posted this bucket list on Facebook today and I was at a lose end so decided play along.<br />
<br />
Been Married x<br />
Fell in love x<br />
Gone on a blind date x<br />
Skipped school x<br />
Watched someone give birth x<br />
Watched someone die x<br />
Been to France x<br />
Ridden in an ambulance x<br />
Been to America x<br />
Been to Europe x<br />
Been to Blackpool x<br />
Been to Liverpool x<br />
Been to Newcastle x<br />
Visited Disneyland x<br />
Visited Legoland x<br />
Seen Grand Canyon x<br />
Flown in a helicopter x<br />
Been on a cruise x<br />
Served on a jury<br />
Danced in the rain x<br />
Been to Manchester x<br />
Been to Edinburgh x<br />
Played in a band x<br />
Sang karaoke x<br />
Made prank phone calls x<br />
Laughed so much you cried x<br />
Caught a snowflake on your tongue x<br />
Had children x<br />
Had a pet x<br />
Been sledging on big hill x<br />
Been downhill skiing<br />
Been water skiing<br />
Rode on a motorcycle x<br />
Traveled on a bus, train and coach x<br />
Jumped out of a plane<br />
Been to an outside movie x<br />
Rode a camel x<br />
Rode a Donkey x<br />
Been on TV<br />
Been in the newspaper x<br />
Stayed in the Hospital x<br />
Donated blood x<br />
Gotten a piercing x<br />
Gotten a tattoo x<br />
Driven over 100 mph x<br />
Been scuba diving<br />
Lived on your own x<br />
Rode in the back of police car x<br />
Got a speeding ticket<br />
Broken a bone x<br />
Gotten stitches x<br />
Travelled Alone x<br />
<br />
--------------------------------<br />
<br />
Apparently this is a UK Bucket List and it seems I'm doing quite well. But the thing is, I still don't get the point.<br />
<br />
Why do I want to write a list of things to do before I kick the bucket? And, do I really think that the things I could write down will ever be things I'd look back on with regret if I failed to tick them off?<br />
<br />
Well no, but then again, yes. But in a very different way. The list would be less about things and places and more about people and love.<br />
<br />
Don't get me wrong, I really want to go to New Zealand; but since becoming ill it's not because of the place any more but more that I'd love to be with Rachel and experience her joy of a trip. <br />
<br />
Mind you, it might be cool to be on the TV.<br />
<br />LLM Callinghttp://www.blogger.com/profile/17199375981896229914noreply@blogger.com7tag:blogger.com,1999:blog-1405244694344796213.post-57971982525564921862016-06-11T10:53:00.003+01:002016-06-11T10:56:58.525+01:00Disability Accessibility #poetry #campaign #disability<div class="separator" style="clear: both; text-align: center;">
<a href="https://4.bp.blogspot.com/-eD1r8VlrNcM/V1vgX7_3ARI/AAAAAAAAcj8/mXgCOORQQGEov1OlC-gx7vL3DYIR3xlHgCLcB/s1600/_79553339_disabled_sign_pa.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="111" src="https://4.bp.blogspot.com/-eD1r8VlrNcM/V1vgX7_3ARI/AAAAAAAAcj8/mXgCOORQQGEov1OlC-gx7vL3DYIR3xlHgCLcB/s200/_79553339_disabled_sign_pa.jpg" width="200" /></a></div>
<br />
<br />
I am pretty lucky<br />
In our local community<br />
There are crossings aplenty<br />
And fairly good accessibility<br />
<br />
But there is one street<br />
Cambered towards the road<br />
I have to use it sometimes<br />
And take it very very slow<br />
<br />
I have asked my council<br />
If anything can be done<br />
Since it's the route to the doctors<br />
"Could you move?" is their return<br />
<br />
But I'm not really complaining<br />
Because I know it's worse elsewhere<br />
There are impossible places<br />
None on wheels can go near there<br />
<br />
When we went up North<br />
On our family holiday<br />
I really was quite shocked<br />
How bad it is for many<br />
<br />
Of course in older towns<br />
There is historicity<br />
But still it makes me sad<br />
That those places I can't be<br />
<br />
But there's really no excuse<br />
For anything that's new<br />
Yet it can be impossible<br />
Bet it's invisible to you<br />
<br />
A badly parked car<br />
Overhanging a walkway<br />
Or parked on the pavement<br />
Means it completely blocks my way<br />
<br />
What are my choices?<br />
Take the risk, go on the road?<br />
That's fine if I'm with others<br />
But on my own, there I can't go<br />
<br />
Even a tiny step<br />
Of a few inches or more<br />
At the entrance to a shop<br />
Means I can't go in that store<br />
<br />
Or a really small doorway<br />
Into a disabled loo<br />
Makes it inaccessible<br />
Yet it won't be clear to you<br />
<br />
And what about a manual door<br />
How do I open it and move through?<br />
Let alone two sets of doors<br />
Would a different layout kill you?<br />
<br />
This is about my wheels<br />
My scooter or wheelchair<br />
Add to that my sight<br />
And it really is a mare<br />
<br />
Can't see the obstacles<br />
Have to assume it's all OK<br />
Until it really isn't<br />
And then I'm in the way<br />
<br />
And mostly the public's great<br />
But every now and then<br />
Someone tuts and huffs<br />
Because I'm delaying them<br />
<br />
And it really hurts<br />
Because I'm trying the best I can<br />
So if you see someone struggling<br />
Could you offer to lend a hand?<br />
<br />
Of course you might be rejected<br />
That is an individual's choice<br />
But you never know just who<br />
Will be relieved to hear your voiceLLM Callinghttp://www.blogger.com/profile/17199375981896229914noreply@blogger.com13tag:blogger.com,1999:blog-1405244694344796213.post-49319491973630812482016-06-08T16:12:00.001+01:002016-06-08T16:12:41.284+01:00Can't really see my food any more<p dir="ltr">It struck me today, when I was eating on my own, that I can't really see my food any more.  </p>
<p dir="ltr">I don't mean that my eye sight had suddenly got worse, but just that I noticed it in a new way today.  And it occurred to me that I now seek out food which is varied in colour and texture (which is healthy so not one of the worst side effects) so that I can at least try to differentiate between the elements with my remaining vision and cutlery.</p>
<p dir="ltr">I feel my food more than look for it; I try to get a variation on my fork, rather than select specific items; and so far it's mostly been OK. </p>
<p dir="ltr">Interestingly I've become much less interested in meat; it doesn't look appealing really, where as fish smells lovely and is easy to eat. And add in the fact that it's often difficult to cut, which means I need someone else to do it for me because of pain and/or weakness in my hands and it's appeal drops through the floor.</p>
<p dir="ltr">I don't think I've ever really looked at my food very much, which is no doubt related to my eating disorder; and I've concentrated on conversations at meal times, but today I was eating on my own and so it was obvious.</p>
<p dir="ltr">But it also became clear that I'm less influenced by the sight of food and that I'm eating less, I'm actually not interested in it. I used to get a drink and see food in the kitchen and feel hunger and need to eat, well that's no longer possible and so I'm eating less.</p>
<p dir="ltr">I'm not sure what this says really, but it's interesting to me that my emotional hunger has all been sight led.</p>
<p dir="ltr">Anyway, that was my thinking at lunch today, interesting changes happening.</p>
<div class="separator" style="clear: both; text-align: center;"> <a href="https://lh3.googleusercontent.com/-wiLZQWoU7Pc/V1g15QE9kPI/AAAAAAAAcjE/otGfhckn5R0/s1600/20160229_140439.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"> <img border="0" src="https://lh3.googleusercontent.com/-wiLZQWoU7Pc/V1g15QE9kPI/AAAAAAAAcjE/otGfhckn5R0/s640/20160229_140439.jpg"> </a> </div>LLM Callinghttp://www.blogger.com/profile/17199375981896229914noreply@blogger.com3tag:blogger.com,1999:blog-1405244694344796213.post-32300563937537895232016-06-03T18:02:00.002+01:002016-06-03T18:02:32.450+01:00Folding Electric Wheelchair BPDP 10J ReviewA month ago my folding electric wheelchair arrived from <a href="http://better-products-for-disabled-people.myshopify.com/" target="_blank">Better Products for Disabled People</a>. I invested my back dated Personal Independence Payment into this purchase after <b>finally </b>agreeing with Occupational Therapists that an electric wheelchair would broaden my life beyond what I could enjoy with my mobility scooter.<br />
<br />
I tried lots of different electric wheelchairs before deciding to ask for a trial of the BPDP10J but all of them had one major drawback, they wouldn't fit in our car, let alone in a smaller car. My goal for the electric wheelchair was to get out and about more with friends in their cars and for work using taxis; but the conventional power chair market had nothing which could help with this. It was the folding aspect of the BPDP10J which appealed to me and made it something worth trying.<br />
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://4.bp.blogspot.com/-wRUORdo_U_4/V1GzPhP2u6I/AAAAAAAAcgM/9o8XrRGK_zgf1VlAvVxY7VRswz0nO5RugCLcB/s1600/home-slide6%2B-%2BCopy.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="160" src="https://4.bp.blogspot.com/-wRUORdo_U_4/V1GzPhP2u6I/AAAAAAAAcgM/9o8XrRGK_zgf1VlAvVxY7VRswz0nO5RugCLcB/s200/home-slide6%2B-%2BCopy.jpg" width="200" /></a></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://3.bp.blogspot.com/-Jxh_K1MBmac/V1GzPk4JlLI/AAAAAAAAcgQ/o3gqY-DRRx4vPvNZds1lF5J5bSdENDGnQCLcB/s1600/home-slide7%2B-%2BCopy.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="200" src="https://3.bp.blogspot.com/-Jxh_K1MBmac/V1GzPk4JlLI/AAAAAAAAcgQ/o3gqY-DRRx4vPvNZds1lF5J5bSdENDGnQCLcB/s200/home-slide7%2B-%2BCopy.jpg" width="200" /></a></div>
<br />
<br />
I emailed BPDJ and spoke to Shaun who said he had a customer who would happily bring his wheelchair to me to try. Within a few days Alan and his wonderful wife arrived at my house with his BPDP10J wheelchair, unloaded it, opened it and invited me to have a spin. I couldn't believe how easy it was for Alan to get the wheelchair out of his car and was amazed by the simple way it opened up ready for use. I had a slow, and then quicker, spin around the close outside my home and was sold almost straight away. My only concern was that the footplate was small and meant I couldn't get my legs comfortable, which I knew would become a major issue with my MS pain. Alan said that BPDP were looking at making larger footplates and I should speak to Shaun, which I did who said he would make it happen for me, no problem at all.<br />
<br />
I can not overestimate the benefit of speaking to someone like Alan who is also disabled and seeing the chair in action; or the positivity of Shaun at BPDP in every conversation we ever had and the way he completely understood what my issues were and what I needed. I was concerned that I would be getting the first of the newly designed models, but was reassured that they would make sure the chair would be altered to meet my needs. I was safe in their hands.<br />
<br />
The worst part of the whole experience from enquiry to trial to order to delivery was the wait to get the 10J model; it seemed to take forever to arrive from China and make it through customs. But it was worth the wait, which actually was less than 3 weeks, to have the first of the newest specification models with the larger footplate; it is wonderful.<br />
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://1.bp.blogspot.com/-Ds7KSif-K9A/V1GwQ48DeCI/AAAAAAAAcgA/9aqNUJ8NPVwSs2TIlEzzK7lWv8XLKibXACLcB/s1600/13100984_10153470748757539_474979098_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://1.bp.blogspot.com/-Ds7KSif-K9A/V1GwQ48DeCI/AAAAAAAAcgA/9aqNUJ8NPVwSs2TIlEzzK7lWv8XLKibXACLcB/s320/13100984_10153470748757539_474979098_n.jpg" width="179" /></a></div>
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<br />
Over the last 3 weeks I have tested the BPDP10J all over the place. I started around the house but quickly decided I needed a larger space to practice my turning skills, especially my reversing. I think this was as much to do with my hand eye coordination, extremely minimal eye sight and confidence than anything.<br />
<br />
We decided that the best place to go would be our local supermarket and I put a warning on Facebook for everyone so that they knew the <b>yellow peril</b> (Alan named us thus) was on the move. I know the store well and have taken my mobility scooter there quite a few times and therefore this was a good place to compare and contrast as well as try out the BPDP10J maneuverability. <br />
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<a href="https://1.bp.blogspot.com/-nJHWSRqVQ8k/V1G3yFp0IRI/AAAAAAAAcg0/5CKkudXULUIKOEkFns4-UUi0lZlW8KR9QCLcB/s1600/13282258_10153528735242539_1078123533_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://1.bp.blogspot.com/-nJHWSRqVQ8k/V1G3yFp0IRI/AAAAAAAAcg0/5CKkudXULUIKOEkFns4-UUi0lZlW8KR9QCLcB/s320/13282258_10153528735242539_1078123533_n.jpg" width="180" /></a></div>
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<br />
Mike and I were both really impressed with how little space it needed in the boot of the car. It could probably fit behind a front seat if no one was in the back, but we haven't tried that out. In the supermarket I was shocked by how much better it could get round obstacles and corners, it literally turns on a penny if I get my hand eye coordination sorted. It can get through much smaller spaces and is much smoother as well as a much more comfortable position, leaving me less tired and therefore more able to cope with the other MS symptoms. The yellow colour did nothing to help people see me, but I've decided that that's as much to do with being lower and disabled people being invisible than anything else.<br />
<br />
I took the 10J to a garden centre, a local coffee shop, to a restaurant, to the theatre, to a scouting meeting and to church over the next few days and the only problems I encountered were that it doesn't cope so well offroad and that everyone wants a go!!<br />
<br />
Then this past week we have been on holiday in Lancashire. We were staying in a beautiful cottage in the countryside and we took both the mobility scooter and the BPDP10J. The plan was to use the mobility scooter around the farm and anywhere with offroad type elements; and use the wheelchair everywhere else. Over the week I took it all over Blackpool with great success along the promenade, across tram tracks, down the piers, through arcades and shops and into restaurants;<br />
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<a href="https://2.bp.blogspot.com/-R0oLxdP2-xU/V1G3p0nXNkI/AAAAAAAAcgg/_V1VTaQ8C9I8vDooFOM43EwZWatW9K2ugCLcB/s1600/13313383_10153539178667539_773943697_o.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="200" src="https://2.bp.blogspot.com/-R0oLxdP2-xU/V1G3p0nXNkI/AAAAAAAAcgg/_V1VTaQ8C9I8vDooFOM43EwZWatW9K2ugCLcB/s200/13313383_10153539178667539_773943697_o.jpg" width="158" /></a></div>
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<a href="https://1.bp.blogspot.com/-0Q2KlDvafGI/V1G3p9lDmmI/AAAAAAAAcgo/kJkYyPHMxRwjjsogVRyvTZmb_5Q5Ro6PACLcB/s1600/13330493_10153535591707539_1174621989_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="200" src="https://1.bp.blogspot.com/-0Q2KlDvafGI/V1G3p9lDmmI/AAAAAAAAcgo/kJkYyPHMxRwjjsogVRyvTZmb_5Q5Ro6PACLcB/s200/13330493_10153535591707539_1174621989_n.jpg" width="112" /></a></div>
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<a href="https://3.bp.blogspot.com/-SJVA39RMY9Y/V1G3pz83qZI/AAAAAAAAcgk/4UnxSn-E098XYhrqlvxOUCdT8Yio1BV4ACLcB/s1600/13342225_10153539182192539_924976580_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="200" src="https://3.bp.blogspot.com/-SJVA39RMY9Y/V1G3pz83qZI/AAAAAAAAcgk/4UnxSn-E098XYhrqlvxOUCdT8Yio1BV4ACLcB/s200/13342225_10153539182192539_924976580_n.jpg" width="141" /></a></div>
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<br />
around Manchester city centre and across to the old UMIST campus;<br />
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<a href="https://4.bp.blogspot.com/--X4eBW_A2Fc/V1G3_xNOxdI/AAAAAAAAcg8/Q_d3_Dsdyu01dFbbFcnEtQ7HmiJZT4gdgCLcB/s1600/13329722_10153539216132539_1049110307_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="200" src="https://4.bp.blogspot.com/--X4eBW_A2Fc/V1G3_xNOxdI/AAAAAAAAcg8/Q_d3_Dsdyu01dFbbFcnEtQ7HmiJZT4gdgCLcB/s200/13329722_10153539216132539_1049110307_n.jpg" width="150" /></a></div>
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<br />
to a number of different restaurants where it was always the most comfortable seat in the place; and I even got down to the lamb pens on the farm which I really didn't expect to manage.<br />
<br />
So, in case you haven't guessed, my verdict is that the BPDP10J is brilliant. It fits in pretty much any car, it goes on for miles and miles, it's really comfortable and easy to use and it looks cool too. I won't use it for a walk in the woods, but pretty much everywhere else it is my wheels of choice.<br />
9/10<br />
<br />
<i>I have received no remediation for this review, but Better Products for Disabled People have made a ÂŁ100 donation to the MS Trust in my name.</i><br />
<br />
Below I have provided a video of the BPDP10J in action along with some of the specifications.<br />
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<iframe allowfullscreen="" frameborder="0" height="162" src="https://www.youtube.com/embed/A-UOkvMCi_w" width="287"></iframe><br />
<br />
<br />
<b>BPDP10J Spec:</b><br />
Folding size 590Ă—325Ă—780mm <br />
Unfolding size 975Ă—590Ă—935mm.<br />
Loading capacity of 180 kg.<br />
It can reach to 6km/h with a driving range of 25 km. <br />
10J can climb up to 12°.<br />
It weighs 24 kg (without batteries) and 27 kg (with batteries).<br />
It has a seat width-depth-and height of 480mmX430mmX460mm.<br />
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<br />LLM Callinghttp://www.blogger.com/profile/17199375981896229914noreply@blogger.com50tag:blogger.com,1999:blog-1405244694344796213.post-86359205725239274342016-05-25T17:12:00.000+01:002016-05-25T17:12:01.035+01:00MS Brain for World MS Day #haiku #poetry<div class="separator" style="clear: both; text-align: center;">
<a href="https://1.bp.blogspot.com/-M-obl9hIAbk/V0XOjf4T6VI/AAAAAAAAcdw/gaDV89aMuL4C4jwJMUPJqRGWBzlShIakgCLcB/s1600/MS%2BBrain.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="210" src="https://1.bp.blogspot.com/-M-obl9hIAbk/V0XOjf4T6VI/AAAAAAAAcdw/gaDV89aMuL4C4jwJMUPJqRGWBzlShIakgCLcB/s400/MS%2BBrain.jpg" width="400" /></a></div>
<br />LLM Callinghttp://www.blogger.com/profile/17199375981896229914noreply@blogger.com3tag:blogger.com,1999:blog-1405244694344796213.post-48217272151517830752016-05-17T15:47:00.001+01:002016-05-17T15:47:44.876+01:00How accessible is my blog? #disability #images<div class="separator" style="clear: both; text-align: center;">
<a href="https://4.bp.blogspot.com/-uuIXHIdH6ro/VzstZ2ExVdI/AAAAAAAAcc4/BQU7ukIIs5MG6ZfkMRkiqp7Hu4nHrUS4wCLcB/s1600/encourage%2Bsunset.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://4.bp.blogspot.com/-uuIXHIdH6ro/VzstZ2ExVdI/AAAAAAAAcc4/BQU7ukIIs5MG6ZfkMRkiqp7Hu4nHrUS4wCLcB/s320/encourage%2Bsunset.jpg" width="320" /></a></div>
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This image contains a word</div>
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Can you read it?</div>
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<br /></div>
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Most of you will say, yes. But many of those who are visually impaired can not read the word. This is because they need to use screen reader software to "read" for them and this software has enormous trouble reading images. </div>
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<br /></div>
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I am lucky, I can use my zoom software to make the image as large as I like to read the word. And I thought I had made it clear enough that it would be accessible to everyone. </div>
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<br /></div>
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But I was wrong.</div>
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We all need to better understand what it means for our websites to be accessible. </div>
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<br /></div>
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Here are some simple tips:</div>
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provide a good level of contrast</div>
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write in plain English</div>
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use a clear font with good spacing</div>
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explain all images and videos in text</div>
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provide the text for any sound files</div>
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<br /></div>
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I hope this encourages you</div>
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<br /></div>
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(encourage was the word in the image)</div>
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<br />LLM Callinghttp://www.blogger.com/profile/17199375981896229914noreply@blogger.com8tag:blogger.com,1999:blog-1405244694344796213.post-19125053435160429572016-05-14T08:29:00.000+01:002016-05-14T08:29:22.797+01:00How are your eyes these days? #poetry #DrSeuss<div style="text-align: center;">
Oh the things </div>
<div style="text-align: center;">
That people say</div>
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The words I wish </div>
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Would go away</div>
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You don't look blind</div>
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How are your eyes</div>
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What can you see</div>
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Can you see the skies</div>
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<br /></div>
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And patiently </div>
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I answer them</div>
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But very soon </div>
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I won't pretend</div>
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That it doesn't annoy</div>
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And doesn't offend</div>
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Because those questions</div>
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Will usually send</div>
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Me over the edge</div>
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Into wondering if</div>
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Anyone knows</div>
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What it's like to live</div>
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With little sight</div>
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And lots of pain</div>
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And yet they ask</div>
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Over and over again</div>
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<br /></div>
<div style="text-align: center;">
How are you feeling?</div>
<div style="text-align: center;">
You seem OK</div>
<div style="text-align: center;">
I'm glad things are better</div>
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Not so bad today?</div>
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And what do I say?</div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
Tell me what do I say?</div>
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To make you feel better</div>
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Coz I think that's it</div>
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You want to know</div>
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That I'm not so sick</div>
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Because that's easier</div>
<div style="text-align: center;">
Than having to see</div>
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Really what it's like</div>
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Living life as me</div>
<div style="text-align: center;">
And realising</div>
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I'm making the best</div>
<div style="text-align: center;">
Of what I've got</div>
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I've still got the rest</div>
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Of my skills and talents</div>
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And beyond the aches</div>
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I can use my brain</div>
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That's no big shakes</div>
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<br /></div>
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So how are my eyes?</div>
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No better, no worse</div>
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I'm getting on</div>
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I don't feel cursed</div>
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In fact I feel blessed</div>
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To have technology</div>
<div style="text-align: center;">
And by the way ...</div>
<div style="text-align: center;">
I am still me!</div>
<br />
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<a href="https://3.bp.blogspot.com/-6WQC21ebDyM/VzbTaAt-dsI/AAAAAAAAcao/-ITx6zD4uT4k2wFHQyrBxEaYOKiz9sQJQCLcB/s1600/how%2Bare%2Byour%2Beyes%2Bthese%2Bdays.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="112" src="https://3.bp.blogspot.com/-6WQC21ebDyM/VzbTaAt-dsI/AAAAAAAAcao/-ITx6zD4uT4k2wFHQyrBxEaYOKiz9sQJQCLcB/s200/how%2Bare%2Byour%2Beyes%2Bthese%2Bdays.jpg" width="200" /></a></div>
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<br /></div>
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Linked up at <a href="http://www.vevivos.com/2016/05/12/prose-thought-12th-may-2016/" target="_blank">Prose 4 Thought</a></div>
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<br /></div>
<br />LLM Callinghttp://www.blogger.com/profile/17199375981896229914noreply@blogger.com15tag:blogger.com,1999:blog-1405244694344796213.post-28513406953606122802016-05-14T07:56:00.000+01:002016-05-14T07:56:48.123+01:00I will still EXPERIENCE the World #travel #disability #spoonieThis morning I read a wonderful article on <a href="http://themighty.com/2016/05/traveling-and-accepting-new-life-with-illness/" target="_blank">The Mighty: When I Saw the Adventurous Life I Envisioned Before My Illness Slip Away</a> which spoke a great deal to how I can feel at times. I recommend that you read it for yourself, but in brief, it speaks of a young woman diagnosed with a chronic illness who is having to come to terms with changing her plan for a life travelling the world. There are days when I can let myself think like this, and these were almost every day in the first six months after loosing my eye sight and realising my mobility problems were not a temporary blip; but most days now I think differently.<br />
<br />
<u>My Travel Plans (as were)</u><br />
I will <b>see </b>everything there is to <b>see </b>in the world; all the amazing sights and people and cultures and buildings and natural wonders. <br />
<br />
I will stand on Antarctica and walk in colonies of penguins; drive an RV through New Zealand and see the land of giants; watch the sunset over deserts; trek through forests to see orangutans; worry about bears in Alaska and time eruptions in Iceland; see the Northern Lights and watch dolphins and whales time and time again; try disgusting food because it's better to have tried and disliked than never to have tried it at all. <br />
<br />
It was all mapped out, every square inch of the planet a place to be seen and explored and captured with my camera and shared with Rachel and Mike. It was a life full of adventure and fun but absolutely no bungee jumping!!<br />
<br />
<u>My Travel Plans (as I grieved)</u><br />
There's no point in even trying to go to any of the places I have always wanted to see, because I can't see. There's no point in expecting to trek through jungles or take a boat up the amazon, because I can't trek or even get on a little boat let alone sit in it for hours. There's no point planning to see the Northern Lights because they're subtle and will not be bright enough for my little sight to pick up, and I will be too tired by the evening to be able to cope with the trips anyway etc etc. A spiral of can nots and will nots and impossibilities for the future. <br />
<br />
but......<br />
I have come through the grief (I'll be blogging about how that happened) and now .....<br />
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<a href="https://4.bp.blogspot.com/-b00ixufbPLc/VzbL1pjBs7I/AAAAAAAAcaY/CZkzahj8U6Q1MjoOsE9vavZMBoStSX2NgCLcB/s1600/world.gif" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="137" src="https://4.bp.blogspot.com/-b00ixufbPLc/VzbL1pjBs7I/AAAAAAAAcaY/CZkzahj8U6Q1MjoOsE9vavZMBoStSX2NgCLcB/s200/world.gif" width="200" /></a></div>
<br />
<br />
<u>My Travel Plans for life</u><br />
I will <b>experience </b>everything I possibly can in the world; all the amazing sights and people and cultures and buildings and natural wonders. I will find ways of travelling which make it possible; we are trying cruising this summer to see how that works for me. I will meet people from different cultures and enjoy their company because it's always been more about their stories than about what they look like. I will visit the natural wonders and I will hear through Mike and Rachel what I can not see and we will take photos and I will use technology, there at the place, to see it the very best way I can. I will open my ears and hear the waterfalls; I will touch the rocks and the ice of the glaciers and I will feel the wind and spray from the sea. I will feel the joy of those around me and my own as I travel with loved ones and place memories in my heart.<br />
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I might be in a wheelchair, or scooter, or perhaps in a funky off-roading contraption and I will find a way. I might need assistance, but we all need assistance from loved ones or experts whenever we travel, it's just a different form of help.<br />
<br />
I have it all mapped out and it's the whole world. I will see as much as it's possible to see and I will see it with the whole of me; I will experience it as me and it will be awesome. No disability is going to stop me, my only limitation is money and let's be clear, that was always the limiting factor but it doesn't matter in dreams and plans for the future.<br />
<br />LLM Callinghttp://www.blogger.com/profile/17199375981896229914noreply@blogger.com4tag:blogger.com,1999:blog-1405244694344796213.post-40569052584650118322016-05-05T22:28:00.000+01:002016-05-14T08:05:09.909+01:00Spring into Spring with Torch Trust #poetry<div class="separator" style="clear: both; text-align: center;">
<a href="https://3.bp.blogspot.com/-RObxbtTHzx8/Vyu6hm7GuoI/AAAAAAAAcYM/80RVz5dfjdAB97KjObVHMg4xILfFPK7TgCLcB/s1600/13052561_10153459371207539_1925417283_o.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="112" src="https://3.bp.blogspot.com/-RObxbtTHzx8/Vyu6hm7GuoI/AAAAAAAAcYM/80RVz5dfjdAB97KjObVHMg4xILfFPK7TgCLcB/s200/13052561_10153459371207539_1925417283_o.jpg" width="200" /></a></div>
<br />
<div style="text-align: center;">
Spring into spring</div>
<div style="text-align: center;">
Here new lives begin</div>
<div style="text-align: center;">
Building</div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
Building</div>
<div style="text-align: center;">
Peace in creation</div>
<div style="text-align: center;">
Gardening </div>
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<br /></div>
<div style="text-align: center;">
Gardening</div>
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Therapy with fingers</div>
<div style="text-align: center;">
Growing</div>
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<br /></div>
<div style="text-align: center;">
Growing</div>
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Plants and confidence</div>
<div style="text-align: center;">
Perfection</div>
<div style="text-align: center;">
<br />
Linked up at <a href="http://www.vevivos.com/2016/05/12/prose-thought-12th-may-2016/" target="_blank">Prose 4thought</a></div>
LLM Callinghttp://www.blogger.com/profile/17199375981896229914noreply@blogger.com5tag:blogger.com,1999:blog-1405244694344796213.post-70554841912828731442016-05-05T22:21:00.001+01:002016-05-05T22:21:11.232+01:00A journey through retreat with Torch Trust #poetry<div class="separator" style="clear: both; text-align: center;">
<a href="https://3.bp.blogspot.com/-BjDQZ8F41es/Vyu4314UJHI/AAAAAAAAcX4/JSFMEGoh5Y8kHP5o_B581QwYnTUMt_cZwCLcB/s1600/13054848_10153455305522539_1062501732_o.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="112" src="https://3.bp.blogspot.com/-BjDQZ8F41es/Vyu4314UJHI/AAAAAAAAcX4/JSFMEGoh5Y8kHP5o_B581QwYnTUMt_cZwCLcB/s200/13054848_10153455305522539_1062501732_o.jpg" width="200" /></a></div>
<br />
<div style="text-align: center;">
High anxiety</div>
<div style="text-align: center;">
When we all arrive</div>
<div style="text-align: center;">
What will be?</div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
Immediately</div>
<div style="text-align: center;">
Welcoming friendly faces</div>
<div style="text-align: center;">
Put us at ease</div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
No expectations</div>
<div style="text-align: center;">
Come just as we are</div>
<div style="text-align: center;">
Relax for the week</div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
Bedrooms</div>
<div style="text-align: center;">
Comfy and bright</div>
<div style="text-align: center;">
Home from home</div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
Every detail</div>
<div style="text-align: center;">
Thought out with prayer</div>
<div style="text-align: center;">
A holy place</div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
Within a day</div>
<div style="text-align: center;">
Strangers become friends</div>
<div style="text-align: center;">
Sharing stories</div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
Worship</div>
<div style="text-align: center;">
Sustains and renews</div>
<div style="text-align: center;">
Uplifting</div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
Activities</div>
<div style="text-align: center;">
Empower and encourage</div>
<div style="text-align: center;">
New skills</div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
Meal times</div>
<div style="text-align: center;">
Feed body and mind</div>
<div style="text-align: center;">
Fellowship</div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
Now going home</div>
<div style="text-align: center;">
Leaving this holy place</div>
<div style="text-align: center;">
Will return soon</div>
LLM Callinghttp://www.blogger.com/profile/17199375981896229914noreply@blogger.com2tag:blogger.com,1999:blog-1405244694344796213.post-946020212141011942016-05-05T22:18:00.002+01:002016-05-05T22:18:21.986+01:00Torch Holiday and Retreat Centre #poetry<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://4.bp.blogspot.com/-fGpCZOqFR9Y/Vyu4hVxBzAI/AAAAAAAAcX0/P34JWjjlHeQGSRaXGEwqC9KUKOvmBRsYQCLcB/s1600/13023346_10153454240457539_986908583_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="110" src="https://4.bp.blogspot.com/-fGpCZOqFR9Y/Vyu4hVxBzAI/AAAAAAAAcX0/P34JWjjlHeQGSRaXGEwqC9KUKOvmBRsYQCLcB/s200/13023346_10153454240457539_986908583_n.jpg" width="200" /></a></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
Welcomed warmly</div>
<div style="text-align: center;">
Hearts, hands and minds</div>
<div style="text-align: center;">
Completely safe</div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
Completely safe</div>
<div style="text-align: center;">
In Jesus' protection</div>
<div style="text-align: center;">
Everyone valued</div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
Everyone valued</div>
<div style="text-align: center;">
For individual talents</div>
<div style="text-align: center;">
As children of God</div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
As children of God</div>
<div style="text-align: center;">
Supported and cherished</div>
<div style="text-align: center;">
No fear here</div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
No fear here</div>
<div style="text-align: center;">
On retreat with torch trust</div>
<div style="text-align: center;">
Heaven on earth</div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
Heaven on earth</div>
<div style="text-align: center;">
All eternally loved</div>
<div style="text-align: center;">
Welcomed warmly</div>
LLM Callinghttp://www.blogger.com/profile/17199375981896229914noreply@blogger.com1tag:blogger.com,1999:blog-1405244694344796213.post-31124986178102577052016-04-26T12:26:00.000+01:002016-04-13T14:21:24.161+01:00#TreasuredMoments Bloom Linky<div align="center" style="padding: 5px;">
<div>
<div>
<span style="font-size: large;">Welcome to the </span><a href="http://mscalling.blogspot.co.uk/p/treasured-moments.html" style="font-size: x-large;" target="_blank">#TreasuredMoments</a><span style="font-size: large;"> link-up.</span><br />
<span style="font-size: large;">The place to share treasured moments in poems and blog posts.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">This time the linky will last two weeks until 26th April 2016 and I'd especially love to see your posts about <b>Bloom</b></span><span style="font-size: large;">.</span></div>
<div>
<span style="font-size: large;"><br /></span></div>
</div>
<img alt="MS Calling" src="http://img.photobucket.com/albums/v430/EmMUK/treasure%20every%20moment%20web.jpg" height="320" title="MS Calling" width="249" /></div>
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<!-- end InLinkz script -->LLM Callinghttp://www.blogger.com/profile/17199375981896229914noreply@blogger.com0tag:blogger.com,1999:blog-1405244694344796213.post-29102299483202522072016-04-23T06:00:00.000+01:002016-04-23T06:00:08.110+01:00Tremor #AtoZofMS #AtoZChallenge #poetry<div style="text-align: center;">
<a href="https://2.bp.blogspot.com/-4ARrk49x6ww/VvprcyXLhuI/AAAAAAAAbQk/251d1OAk7wslYb4v6UdV8laccw8RxK4Lg/s1600/a%2Bto%2Bz%2Bof%2Bms%2Bsmall.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://2.bp.blogspot.com/-4ARrk49x6ww/VvprcyXLhuI/AAAAAAAAbQk/251d1OAk7wslYb4v6UdV8laccw8RxK4Lg/s1600/a%2Bto%2Bz%2Bof%2Bms%2Bsmall.jpg" /></a></div>
<div style="text-align: center;">
<br />
<b>Tremor</b><br />
About one third of people with multiple sclerosis may have tremor to some degree.<br />
<br />
Shaking<br />
Trembling<br />
Tremor<br />
<br />
It's MS<br />
Not parkinsons<br />
Ataxia<br />
<br />
Didn't know<br />
This was a possible symptom<br />
But it is, for me<br />
<br />
<br />
<i>For some people it can be a relatively mild problem with coordination (ataxia), but for others it can be one of the most disabling symptoms of MS.</i></div>
<div style="text-align: center;">
<b><br /></b>
<br />
<b><br /></b>
Find out more about MS at<br />
<a href="https://www.mstrust.org.uk/a-z" target="_blank">MS Trust A to Z</a><br />
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://4.bp.blogspot.com/-z_bbgLMVNXU/Vvp_ssxaPKI/AAAAAAAAbRE/Xfyl9cpmWk0OmZw9UMZqE-nHroynVT9jQ/s1600/mstrust%2Bfundraising%2Bsmall.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://4.bp.blogspot.com/-z_bbgLMVNXU/Vvp_ssxaPKI/AAAAAAAAbRE/Xfyl9cpmWk0OmZw9UMZqE-nHroynVT9jQ/s1600/mstrust%2Bfundraising%2Bsmall.jpg" /></a></div>
<a href="http://uk.virginmoneygiving.com/emmuk74" target="_blank">Donate to MS Trust</a><br />
<br />
I'm also writing an<br />
<a href="http://llmcalling.blogspot.co.uk/2016/03/a-to-z-of-blessings-challenge-reveal.html" target="_blank">A to Z of Blessings at LLM Calling</a><br />
<br /></div>
<div style="text-align: center;">
Find other blogs posting their A to Z this April 2016 </div>
<div style="text-align: center;">
<a href="http://www.a-to-zchallenge.com/" target="_blank"><img src="http://i1139.photobucket.com/albums/n547/Jeremy-iZombie/A2Z-BADGE%202016-smaller_zpslstazvib.jpg" title="Blogging from A to Z April Challenge" /></a></div>
LLM Callinghttp://www.blogger.com/profile/17199375981896229914noreply@blogger.com2tag:blogger.com,1999:blog-1405244694344796213.post-43609271169564491872016-04-22T06:00:00.000+01:002016-04-22T06:00:28.172+01:00Spasticity #AtoZofMS #AtoZChallenge #poetry<div style="text-align: center;">
<a href="https://2.bp.blogspot.com/-4ARrk49x6ww/VvprcyXLhuI/AAAAAAAAbQk/251d1OAk7wslYb4v6UdV8laccw8RxK4Lg/s1600/a%2Bto%2Bz%2Bof%2Bms%2Bsmall.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://2.bp.blogspot.com/-4ARrk49x6ww/VvprcyXLhuI/AAAAAAAAbQk/251d1OAk7wslYb4v6UdV8laccw8RxK4Lg/s1600/a%2Bto%2Bz%2Bof%2Bms%2Bsmall.jpg" /></a></div>
<div style="text-align: center;">
<br />
<b>Spasticity</b><br />
Spasticity is a symptom of multiple sclerosis<br />
<b><br /></b>
Spasticity<br />
pretty new to me<br />
started this year<br />
<br />
leg locked<br />
couldn't move it at all<br />
terrified<br />
<br />
shoulder stopped<br />
is it a heart attack? no<br />
different spasm<br />
<br />
have to be ready<br />
pray that it stays rare for me<br />
not my favourite<br />
<b><br /></b>
<i>Spasticity causes your muscles to feel stiff, heavy and difficult to move. A spasm is a sudden stiffening of a muscle which may cause a limb to kick out or jerk towards your body.</i></div>
<div style="text-align: center;">
<b><br /></b>
<br />
<b><br /></b>
Find out more about MS at<br />
<a href="https://www.mstrust.org.uk/a-z" target="_blank">MS Trust A to Z</a><br />
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://4.bp.blogspot.com/-z_bbgLMVNXU/Vvp_ssxaPKI/AAAAAAAAbRE/Xfyl9cpmWk0OmZw9UMZqE-nHroynVT9jQ/s1600/mstrust%2Bfundraising%2Bsmall.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://4.bp.blogspot.com/-z_bbgLMVNXU/Vvp_ssxaPKI/AAAAAAAAbRE/Xfyl9cpmWk0OmZw9UMZqE-nHroynVT9jQ/s1600/mstrust%2Bfundraising%2Bsmall.jpg" /></a></div>
<a href="http://uk.virginmoneygiving.com/emmuk74" target="_blank">Donate to MS Trust</a><br />
<br />
I'm also writing an<br />
<a href="http://llmcalling.blogspot.co.uk/2016/03/a-to-z-of-blessings-challenge-reveal.html" target="_blank">A to Z of Blessings at LLM Calling</a><br />
<br /></div>
<div style="text-align: center;">
Find other blogs posting their A to Z this April 2016 </div>
<div style="text-align: center;">
<a href="http://www.a-to-zchallenge.com/" target="_blank"><img src="http://i1139.photobucket.com/albums/n547/Jeremy-iZombie/A2Z-BADGE%202016-smaller_zpslstazvib.jpg" title="Blogging from A to Z April Challenge" /></a></div>
LLM Callinghttp://www.blogger.com/profile/17199375981896229914noreply@blogger.com1tag:blogger.com,1999:blog-1405244694344796213.post-53958939407119695582016-04-21T06:30:00.000+01:002016-04-21T06:30:19.178+01:00Relaxation #AtoZofMS #AtoZChallenge #poetry<div style="text-align: center;">
<a href="https://2.bp.blogspot.com/-4ARrk49x6ww/VvprcyXLhuI/AAAAAAAAbQk/251d1OAk7wslYb4v6UdV8laccw8RxK4Lg/s1600/a%2Bto%2Bz%2Bof%2Bms%2Bsmall.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://2.bp.blogspot.com/-4ARrk49x6ww/VvprcyXLhuI/AAAAAAAAbQk/251d1OAk7wslYb4v6UdV8laccw8RxK4Lg/s1600/a%2Bto%2Bz%2Bof%2Bms%2Bsmall.jpg" /></a></div>
<div style="text-align: center;">
<br />
<b>Relaxation</b></div>
<div style="text-align: center;">
Regular relaxation is really important to manage the symptoms of MS.<br />
<br />
Stress is a trigger<br />
it makes my MS symptoms<br />
so much worse<br />
<br />
Overwork<br />
exhausts me causing<br />
pain and fatigue<br />
<br />
I must rest<br />
Take time out regularly<br />
Relax<br />
<br />
Not easy for me<br />
I've never liked to rest<br />
But it works<br />
<br />
So I'm learning<br />
to relieve tension, chill out<br />
put myself first<br />
<br />
<br />
<i>Regular relaxation can help you decrease tension in muscles, lower your blood pressure and slow your heart rate. Relaxation can help with fatigue as it promotes good sleep patterns, increases benefit from rest periods during the day and can help to manage stressful situations.</i><br />
<b><br /></b>
<br />
<b><br /></b>
Find out more about MS at<br />
<a href="https://www.mstrust.org.uk/a-z" target="_blank">MS Trust A to Z</a><br />
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://4.bp.blogspot.com/-z_bbgLMVNXU/Vvp_ssxaPKI/AAAAAAAAbRE/Xfyl9cpmWk0OmZw9UMZqE-nHroynVT9jQ/s1600/mstrust%2Bfundraising%2Bsmall.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://4.bp.blogspot.com/-z_bbgLMVNXU/Vvp_ssxaPKI/AAAAAAAAbRE/Xfyl9cpmWk0OmZw9UMZqE-nHroynVT9jQ/s1600/mstrust%2Bfundraising%2Bsmall.jpg" /></a></div>
<a href="http://uk.virginmoneygiving.com/emmuk74" target="_blank">Donate to MS Trust</a><br />
<br />
I'm also writing an<br />
<a href="http://llmcalling.blogspot.co.uk/2016/03/a-to-z-of-blessings-challenge-reveal.html" target="_blank">A to Z of Blessings at LLM Calling</a><br />
<br /></div>
<div style="text-align: center;">
Find other blogs posting their A to Z this April 2016 </div>
<div style="text-align: center;">
<a href="http://www.a-to-zchallenge.com/" target="_blank"><img src="http://i1139.photobucket.com/albums/n547/Jeremy-iZombie/A2Z-BADGE%202016-smaller_zpslstazvib.jpg" title="Blogging from A to Z April Challenge" /></a></div>
LLM Callinghttp://www.blogger.com/profile/17199375981896229914noreply@blogger.com2tag:blogger.com,1999:blog-1405244694344796213.post-44728551150240629562016-04-20T06:30:00.000+01:002016-04-20T06:30:23.599+01:00Questions #AtoZofMS #AtoZChallenge #poetry<div style="text-align: center;">
<a href="https://2.bp.blogspot.com/-4ARrk49x6ww/VvprcyXLhuI/AAAAAAAAbQk/251d1OAk7wslYb4v6UdV8laccw8RxK4Lg/s1600/a%2Bto%2Bz%2Bof%2Bms%2Bsmall.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://2.bp.blogspot.com/-4ARrk49x6ww/VvprcyXLhuI/AAAAAAAAbQk/251d1OAk7wslYb4v6UdV8laccw8RxK4Lg/s1600/a%2Bto%2Bz%2Bof%2Bms%2Bsmall.jpg" /></a></div>
<div style="text-align: center;">
<br />
<b>Questions</b></div>
<div style="text-align: center;">
Questions: so many questions. <br />
<br />
What is causing this symptom?<br />
Will it improve or get worse?<br />
Will this symptom stay forever?<br />
Are there any treatment options?<br />
Are there likely to be any triggers which set it off?<br />
What can I do myself to manage this symptom?<br />
What shall I do if my symptoms get worse?<br />
What shall I do if I experience new symptoms?<br />
<i><br /></i>
<i>Possibly the hardest thing is dealing with the huge list of questions which pop up between appointments; especially if you turn to the internet and find lots of conflicting information. It is important to find a trusted source of facts, such as the MS Trust, and share what you are reading with a close friend or relative to help them help you understand.</i><br />
<b><br /></b>
<br />
<b><br /></b>
Find out more about MS at<br />
<a href="https://www.mstrust.org.uk/a-z" target="_blank">MS Trust A to Z</a><br />
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://4.bp.blogspot.com/-z_bbgLMVNXU/Vvp_ssxaPKI/AAAAAAAAbRE/Xfyl9cpmWk0OmZw9UMZqE-nHroynVT9jQ/s1600/mstrust%2Bfundraising%2Bsmall.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://4.bp.blogspot.com/-z_bbgLMVNXU/Vvp_ssxaPKI/AAAAAAAAbRE/Xfyl9cpmWk0OmZw9UMZqE-nHroynVT9jQ/s1600/mstrust%2Bfundraising%2Bsmall.jpg" /></a></div>
<a href="http://uk.virginmoneygiving.com/emmuk74" target="_blank">Donate to MS Trust</a><br />
<br />
I'm also writing an<br />
<a href="http://llmcalling.blogspot.co.uk/2016/03/a-to-z-of-blessings-challenge-reveal.html" target="_blank">A to Z of Blessings at LLM Calling</a><br />
<br /></div>
<div style="text-align: center;">
Find other blogs posting their A to Z this April 2016 </div>
<div style="text-align: center;">
<a href="http://www.a-to-zchallenge.com/" target="_blank"><img src="http://i1139.photobucket.com/albums/n547/Jeremy-iZombie/A2Z-BADGE%202016-smaller_zpslstazvib.jpg" title="Blogging from A to Z April Challenge" /></a></div>
LLM Callinghttp://www.blogger.com/profile/17199375981896229914noreply@blogger.com1tag:blogger.com,1999:blog-1405244694344796213.post-22514542745477049722016-04-19T06:30:00.000+01:002016-04-19T06:30:14.328+01:00Paraparesis #AtoZofMS #AtoZChallenge #poetry<div style="text-align: center;">
<a href="https://2.bp.blogspot.com/-4ARrk49x6ww/VvprcyXLhuI/AAAAAAAAbQk/251d1OAk7wslYb4v6UdV8laccw8RxK4Lg/s1600/a%2Bto%2Bz%2Bof%2Bms%2Bsmall.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://2.bp.blogspot.com/-4ARrk49x6ww/VvprcyXLhuI/AAAAAAAAbQk/251d1OAk7wslYb4v6UdV8laccw8RxK4Lg/s1600/a%2Bto%2Bz%2Bof%2Bms%2Bsmall.jpg" /></a></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<b>Paraparesis </b><br />
Paraparesis is weakness in one or both legs<br />
<br />
For years<br />
My legs have been<br />
Unreliable<br />
<br />
For years<br />
I've blamed it on<br />
My weight<br />
<br />
But I was wrong<br />
It's another symptom<br />
of MS<br />
<br />
Paraparesis<br />
weakness in my left leg<br />
mostly<br />
<br />
Every day<br />
I get out of bed carefully<br />
Will it hold?<br />
<br />
It likes to<br />
SURPRISE me<br />
to be funny<br />
<br />
But no humour found<br />
when on the staircase<br />
or out on town<br />
<br />
Now a stick<br />
stays close always<br />
that's OK<br />
<br />
<br />
<i>Paraparesis can cause problems with walking and balance. </i><br />
<i>It can also increase the risk of having a fall. </i><br />
<b><br /></b>
<br />
<b><br /></b>
Find out more about MS at<br />
<a href="https://www.mstrust.org.uk/a-z" target="_blank">MS Trust A to Z</a><br />
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://4.bp.blogspot.com/-z_bbgLMVNXU/Vvp_ssxaPKI/AAAAAAAAbRE/Xfyl9cpmWk0OmZw9UMZqE-nHroynVT9jQ/s1600/mstrust%2Bfundraising%2Bsmall.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://4.bp.blogspot.com/-z_bbgLMVNXU/Vvp_ssxaPKI/AAAAAAAAbRE/Xfyl9cpmWk0OmZw9UMZqE-nHroynVT9jQ/s1600/mstrust%2Bfundraising%2Bsmall.jpg" /></a></div>
<a href="http://uk.virginmoneygiving.com/emmuk74" target="_blank">Donate to MS Trust</a><br />
<br />
I'm also writing an<br />
<a href="http://llmcalling.blogspot.co.uk/2016/03/a-to-z-of-blessings-challenge-reveal.html" target="_blank">A to Z of Blessings at LLM Calling</a><br />
<br /></div>
<div style="text-align: center;">
Find other blogs posting their A to Z this April 2016 </div>
<div style="text-align: center;">
<a href="http://www.a-to-zchallenge.com/" target="_blank"><img src="http://i1139.photobucket.com/albums/n547/Jeremy-iZombie/A2Z-BADGE%202016-smaller_zpslstazvib.jpg" title="Blogging from A to Z April Challenge" /></a></div>
LLM Callinghttp://www.blogger.com/profile/17199375981896229914noreply@blogger.com0tag:blogger.com,1999:blog-1405244694344796213.post-45990982572176220342016-04-18T06:30:00.000+01:002016-04-18T06:30:30.804+01:00Optic neuritis #AtoZofMS #AtoZChallenge #poetry<div style="text-align: center;">
<a href="https://2.bp.blogspot.com/-4ARrk49x6ww/VvprcyXLhuI/AAAAAAAAbQk/251d1OAk7wslYb4v6UdV8laccw8RxK4Lg/s1600/a%2Bto%2Bz%2Bof%2Bms%2Bsmall.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://2.bp.blogspot.com/-4ARrk49x6ww/VvprcyXLhuI/AAAAAAAAbQk/251d1OAk7wslYb4v6UdV8laccw8RxK4Lg/s1600/a%2Bto%2Bz%2Bof%2Bms%2Bsmall.jpg" /></a></div>
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<b>Optic neuritis</b><br />
Optic neuritis is a common eye problem in multiple sclerosis.<br />
<br />
Optic nerve<br />
Inflammed won't work<br />
Brain can't read<br />
<br />
Without the brain<br />
The eye doesn't see<br />
Blindness<br />
<br />
Optic neuritis<br />
from MS nerve damage<br />
stole my sight<br />
<br />
five times before<br />
but this time overnight<br />
nerve finally died<br />
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<br />
<i>Optic neuritis is also recognised as a condition in its own right, it is not always caused by MS.</i><br />
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<b><br /></b>
Find out more about MS at<br />
<a href="https://www.mstrust.org.uk/a-z" target="_blank">MS Trust A to Z</a><br />
<br />
<div class="separator" style="clear: both; text-align: center;">
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<a href="http://uk.virginmoneygiving.com/emmuk74" target="_blank">Donate to MS Trust</a><br />
<br />
I'm also writing an<br />
<a href="http://llmcalling.blogspot.co.uk/2016/03/a-to-z-of-blessings-challenge-reveal.html" target="_blank">A to Z of Blessings at LLM Calling</a><br />
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Find other blogs posting their A to Z this April 2016 </div>
<div style="text-align: center;">
<a href="http://www.a-to-zchallenge.com/" target="_blank"><img src="http://i1139.photobucket.com/albums/n547/Jeremy-iZombie/A2Z-BADGE%202016-smaller_zpslstazvib.jpg" title="Blogging from A to Z April Challenge" /></a></div>
LLM Callinghttp://www.blogger.com/profile/17199375981896229914noreply@blogger.com0tag:blogger.com,1999:blog-1405244694344796213.post-50882991936084688292016-04-16T14:41:00.002+01:002016-04-16T14:43:45.383+01:00Speccies Reading #review #glasses #shopping<div class="separator" style="clear: both; text-align: center;">
<a href="https://1.bp.blogspot.com/-AkYLIZbtpEo/VxI8ELgaQFI/AAAAAAAAcUw/FWMUCXkz620P2ZE73ux2zcTCFPBqmjTBgCLcB/s1600/speccies.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="76" src="https://1.bp.blogspot.com/-AkYLIZbtpEo/VxI8ELgaQFI/AAAAAAAAcUw/FWMUCXkz620P2ZE73ux2zcTCFPBqmjTBgCLcB/s200/speccies.jpg" width="200" /></a></div>
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Opened this month is <b>Speccies</b>, a brand new shop on Cross Street in Reading.</div>
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Speccies is a brand new way to buy prescription glasses and sunglasses. </div>
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Instead of paying through the nose for your glasses at one of the large chains, you can take your eye test prescription straight to Speccies and get expert advice whilst trying on hundreds of designer frames at internet low prices.</div>
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<a href="https://2.bp.blogspot.com/-eUJnvlL1CI8/VxI9FkzShLI/AAAAAAAAcU8/44D6wrPudVEDFzqhOA8OpB0ZpWeEFgpggCLcB/s1600/12928181_244073742602879_6470615841481452082_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="150" src="https://2.bp.blogspot.com/-eUJnvlL1CI8/VxI9FkzShLI/AAAAAAAAcU8/44D6wrPudVEDFzqhOA8OpB0ZpWeEFgpggCLcB/s200/12928181_244073742602879_6470615841481452082_n.jpg" width="200" /></a></div>
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And the even better news, is that the lenses are all made and supplied by Speccies high-tech optical laboratory that produces lenses and glasses for many other optical retailers and opticians in the UK. </div>
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<i>"Whether you want to look professional, fashionable, sexy or all three, you can choose your eyewear from the fabulous collections of top designer frames online. When it comes to lenses, we supply the world’s leading lens technologies in terms of both spectacle lenses and contact lens options. So, if you insist on high quality and excellent value, then choose Speccies."</i></div>
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As you all know. I have lost almost all my eye sight thanks to MS; but I still need to protect my eyes from UV rays and so I went to Speccies for some sunglasses and also some UV protect glasses to use when I'm on my computer or screen which is emitting UV rays all the time.</div>
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I was incredibly impressed with the range of frames on offer and even more impressed with the advice I received on which frames suited me and would meet my complex needs.</div>
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And the effect on my bank account?</div>
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A fraction of that I have paid in the past even from the discount stores, and no hidden extras to shock you at the end.</div>
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I highly recommend Speccies to you; pop in and say hi to the wonderful owner Uki and say Emma sent you. She'll treat you like a long lost friend. </div>
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You'll never buy glasses anywhere else again.</div>
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<a href="https://4.bp.blogspot.com/-IhDwBFgZBrA/VxJAjqVwS8I/AAAAAAAAcVo/49UOhcb8CEAz-KX2gDE0XZpWYEgMboBGQCKgB/s1600/20160409_142606.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="200" src="https://4.bp.blogspot.com/-IhDwBFgZBrA/VxJAjqVwS8I/AAAAAAAAcVo/49UOhcb8CEAz-KX2gDE0XZpWYEgMboBGQCKgB/s200/20160409_142606.jpg" width="137" /></a></div>
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Find out more about the Speccies store in Reading <a href="https://www.facebook.com/specciesreadinguk/" target="_blank">HERE</a></div>
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<i>Fair Blogger Policy: </i></div>
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<i>Uki is a friend at my Church. </i></div>
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<i>I received a discount for being the first customer at the Speccies store </i></div>
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<i>but all opinions are completely my own.</i></div>
LLM Callinghttp://www.blogger.com/profile/17199375981896229914noreply@blogger.com1tag:blogger.com,1999:blog-1405244694344796213.post-73622486101431762312016-04-16T06:30:00.000+01:002016-04-16T06:30:14.417+01:00Neuropathic Pain #AtoZofMS #AtoZChallenge #poetry<div style="text-align: center;">
<a href="https://2.bp.blogspot.com/-4ARrk49x6ww/VvprcyXLhuI/AAAAAAAAbQk/251d1OAk7wslYb4v6UdV8laccw8RxK4Lg/s1600/a%2Bto%2Bz%2Bof%2Bms%2Bsmall.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://2.bp.blogspot.com/-4ARrk49x6ww/VvprcyXLhuI/AAAAAAAAbQk/251d1OAk7wslYb4v6UdV8laccw8RxK4Lg/s1600/a%2Bto%2Bz%2Bof%2Bms%2Bsmall.jpg" /></a></div>
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<b>Neuropathic pain</b><br />
Neuropathic pain (nerve pain) is caused by damage to the nerves in the brain and spinal cord.<br />
<br />
Pins and needles<br />
up and down my body<br />
always on the move<br />
<br />
Sometimes scary<br />
but usually just irritating<br />
now I know the cause<br />
<br />
Numbness stops me<br />
it is petrifying<br />
every time<br />
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On face or neck<br />
down arms or legs<br />
or in just one spot<br />
<br />
Feels like burning<br />
yet there's nothing to see<br />
just nerves<br />
<br />
Trick of the brain<br />
no actual damage done<br />
not externally<br />
<br />
This is life<br />
with neuropathy<br />
freaky!<br />
<br />
<br />
<i>This includes altered sensations such as pins and needles, numbness, crawling or burning feelings. Examples of nerve pain include painful sensations in the side of the face, called trigeminal neuralgia, and a tight feeling, often around the chest, called the MS hug. Pain in the limbs is very common.</i><br />
<br />
<b><br /></b>
Find out more about MS at<br />
<a href="https://www.mstrust.org.uk/a-z" target="_blank">MS Trust A to Z</a><br />
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://4.bp.blogspot.com/-z_bbgLMVNXU/Vvp_ssxaPKI/AAAAAAAAbRE/Xfyl9cpmWk0OmZw9UMZqE-nHroynVT9jQ/s1600/mstrust%2Bfundraising%2Bsmall.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://4.bp.blogspot.com/-z_bbgLMVNXU/Vvp_ssxaPKI/AAAAAAAAbRE/Xfyl9cpmWk0OmZw9UMZqE-nHroynVT9jQ/s1600/mstrust%2Bfundraising%2Bsmall.jpg" /></a></div>
<a href="http://uk.virginmoneygiving.com/emmuk74" target="_blank">Donate to MS Trust</a><br />
<br />
I'm also writing an<br />
<a href="http://llmcalling.blogspot.co.uk/2016/03/a-to-z-of-blessings-challenge-reveal.html" target="_blank">A to Z of Blessings at LLM Calling</a><br />
<br /></div>
<div style="text-align: center;">
Find other blogs posting their A to Z this April 2016 </div>
<div style="text-align: center;">
<a href="http://www.a-to-zchallenge.com/" target="_blank"><img src="http://i1139.photobucket.com/albums/n547/Jeremy-iZombie/A2Z-BADGE%202016-smaller_zpslstazvib.jpg" title="Blogging from A to Z April Challenge" /></a></div>
LLM Callinghttp://www.blogger.com/profile/17199375981896229914noreply@blogger.com1