MS Brain for World MS Day #haiku #poetry

How accessible is my blog? #disability #images

This image contains a word

Can you read it?

Most of you will say, yes.  But many of those who are visually impaired can not read the word.  This is because they need to use screen reader software to "read" for them and this software has enormous trouble reading images. 

I am lucky, I can use my zoom software to make the image as large as I like to read the word.  And I thought I had made it clear enough that it would be accessible to everyone.  

But I was wrong.

We all need to better understand what it means for our websites to be accessible.  

Here are some simple tips:

provide a good level of contrast

write in plain English

use a clear font with good spacing

explain all images and videos in text

provide the text for any sound files

I hope this encourages you

(encourage was the word in the image)

How are your eyes these days? #poetry #DrSeuss

Oh the things 

That people say

The words I wish 

Would go away

You don't look blind

How are your eyes

What can you see

Can you see the skies

And patiently 

I answer them

But very soon 

I won't pretend

That it doesn't annoy

And doesn't offend

Because those questions

Will usually send

Me over the edge

Into wondering if

Anyone knows

What it's like to live

With little sight

And lots of pain

And yet they ask

Over and over again

How are you feeling?

You seem OK

I'm glad things are better

Not so bad today?

And what do I say?

Tell me what do I say?

To make you feel better

Coz I think that's it

You want to know

That I'm not so sick

Because that's easier

Than having to see

Really what it's like

Living life as me

And realising

I'm making the best

Of what I've got

I've still got the rest

Of my skills and talents

And beyond the aches

I can use my brain

That's no big shakes

So how are my eyes?

No better, no worse

I'm getting on

I don't feel cursed

In fact I feel blessed

To have technology

And by the way ...

I am still me!

Linked up at Prose 4 Thought

I will still EXPERIENCE the World #travel #disability #spoonie

This morning I read a wonderful article on The Mighty: When I Saw the Adventurous Life I Envisioned Before My Illness Slip Away which spoke a great deal to how I can feel at times.  I recommend that you read it for yourself, but in brief, it speaks of a young woman diagnosed with a chronic illness who is having to come to terms with changing her plan for a life travelling the world. There are days when I can let myself think like this, and these were almost every day in the first six months after loosing my eye sight and realising my mobility problems were not a temporary blip; but most days now I think differently.

My Travel Plans (as were)
I will see everything there is to see in the world; all the amazing sights and people and cultures and buildings and natural wonders.

I will stand on Antarctica and walk in colonies of penguins; drive an RV through New Zealand and see the land of giants; watch the sunset over deserts; trek through forests to see orangutans; worry about bears in Alaska and time eruptions in Iceland; see the Northern Lights and watch dolphins and whales time and time again; try disgusting food because it's better to have tried and disliked than never to have tried it at all.

It was all mapped out, every square inch of the planet a place to be seen and explored and captured with my camera and shared with Rachel and Mike.  It was a life full of adventure and fun but absolutely no bungee jumping!!

My Travel Plans (as I grieved)
There's no point in even trying to go to any of the places I have always wanted to see, because I can't see.  There's no point in expecting to trek through jungles or take a boat up the amazon, because I can't trek or even get on a little boat let alone sit in it for hours.  There's no point planning to see the Northern Lights because they're subtle and will not be bright enough for my little sight to pick up, and I will be too tired by the evening to be able to cope with the trips anyway etc etc.  A spiral of can nots and will nots and impossibilities for the future.

but......
I have come through the grief (I'll be blogging about how that happened) and now .....

My Travel Plans for life
I will experience everything I possibly can in the world; all the amazing sights and people and cultures and buildings and natural wonders.  I will find ways of travelling which make it possible; we are trying cruising this summer to see how that works for me.  I will meet people from different cultures and enjoy their company because it's always been more about their stories than about what they look like.  I will visit the natural wonders and I will hear through Mike and Rachel what I can not see and we will take photos and I will use technology, there at the place, to see it the very best way I can.  I will open my ears and hear the waterfalls; I will touch the rocks and the ice of the glaciers and I will feel the wind and spray from the sea.  I will feel the joy of those around me and my own as I travel with loved ones and place memories in my heart.

I might be in a wheelchair, or scooter, or perhaps in a funky off-roading contraption and I will find a way.  I might need assistance, but we all need assistance from loved ones or experts whenever we travel, it's just a different form of help.

I have it all mapped out and it's the whole world.  I will see as much as it's possible to see and I will see it with the whole of me; I will experience it as me and it will be awesome.  No disability is going to stop me, my only limitation is money and let's be clear, that was always the limiting factor but it doesn't matter in dreams and plans for the future.

Spring into Spring with Torch Trust #poetry

Spring into spring

Here new lives begin

Building

Building

Peace in creation

Gardening 

Gardening

Therapy with fingers

Growing

Growing

Plants and confidence

Perfection

Linked up at Prose 4thought

A journey through retreat with Torch Trust #poetry

High anxiety

When we all arrive

What will be?

Immediately

Welcoming friendly faces

Put us at ease

No expectations

Come just as we are

Relax for the week

Bedrooms

Comfy and bright

Home from home

Every detail

Thought out with prayer

A holy place

Within a day

Strangers become friends

Sharing stories

Worship

Sustains and renews

Uplifting

Activities

Empower and encourage

New skills

Meal times

Feed body and mind

Fellowship

Now going home

Leaving this holy place

Will return soon

Torch Holiday and Retreat Centre #poetry

Welcomed warmly

Hearts, hands and minds

Completely safe

Completely safe

In Jesus' protection

Everyone valued

Everyone valued

For individual talents

As children of God

As children of God

Supported and cherished

No fear here

No fear here

On retreat with torch trust

Heaven on earth

Heaven on earth

All eternally loved

Welcomed warmly

#TreasuredMoments Bloom Linky

Welcome to the #TreasuredMoments link-up.
The place to share treasured moments in poems and blog posts.

This time the linky will last two weeks until 26th April 2016 and I'd especially love to see your posts about Bloom.

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An InLinkz Link-up

Tremor #AtoZofMS #AtoZChallenge #poetry

Tremor
About one third of people with multiple sclerosis may have tremor to some degree.

Shaking
Trembling
Tremor

It's MS
Not parkinsons
Ataxia

Didn't know
This was a possible symptom
But it is, for me


For some people it can be a relatively mild problem with coordination (ataxia), but for others it can be one of the most disabling symptoms of MS.

Find out more about MS at
MS Trust A to Z

Donate to MS Trust

I'm also writing an
A to Z of Blessings at LLM Calling

Find other blogs posting their A to Z this April 2016 

Spasticity #AtoZofMS #AtoZChallenge #poetry

Spasticity
Spasticity is a symptom of multiple sclerosis

Spasticity
pretty new to me
started this year

leg locked
couldn't move it at all
terrified

shoulder stopped
is it a heart attack? no
different spasm

have to be ready
pray that it stays rare for me
not my favourite

Spasticity causes your muscles to feel stiff, heavy and difficult to move. A spasm is a sudden stiffening of a muscle which may cause a limb to kick out or jerk towards your body.

Find out more about MS at
MS Trust A to Z

Donate to MS Trust

I'm also writing an
A to Z of Blessings at LLM Calling

Find other blogs posting their A to Z this April 2016 

Relaxation #AtoZofMS #AtoZChallenge #poetry

Relaxation

Regular relaxation is really important to manage the symptoms of MS.

Stress is a trigger
it makes my MS symptoms
so much worse

Overwork
exhausts me causing
pain and fatigue

I must rest
Take time out regularly
Relax

Not easy for me
I've never liked to rest
But it works

So I'm learning
to relieve tension, chill out
put myself first


Regular relaxation can help you decrease tension in muscles, lower your blood pressure and slow your heart rate. Relaxation can help with fatigue as it promotes good sleep patterns, increases benefit from rest periods during the day and can help to manage stressful situations.



Find out more about MS at
MS Trust A to Z

Donate to MS Trust

I'm also writing an
A to Z of Blessings at LLM Calling

Find other blogs posting their A to Z this April 2016 

Questions #AtoZofMS #AtoZChallenge #poetry

Questions

Questions: so many questions.

What is causing this symptom?
Will it improve or get worse?
Will this symptom stay forever?
Are there any treatment options?
Are there likely to be any triggers which set it off?
What can I do myself to manage this symptom?
What shall I do if my symptoms get worse?
What shall I do if I experience new symptoms?

Possibly the hardest thing is dealing with the huge list of questions which pop up between appointments; especially if you turn to the internet and find lots of conflicting information.  It is important to find a trusted source of facts, such as the MS Trust, and share what you are reading with a close friend or relative to help them help you understand.



Find out more about MS at
MS Trust A to Z

Donate to MS Trust

I'm also writing an
A to Z of Blessings at LLM Calling

Find other blogs posting their A to Z this April 2016